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annkd

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About annkd

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    Silver Member

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  • Location
    Sacramento, Ca.
  1. Telangiectasia

    Hi Jeremy - I saw your post and knew I had to respond. I have had 4 laser procedures done in the last 10ish years. I will need another within in the next year or so. The telangiectasia on my mouth bleed. So not attractive. It's not a very comfortable procedure but in my case, I have no choice. The old ones don't come back but new ones did. However, that may not be the case for you. We are all so different. Recovery for me wasn't too bad but one time the doctor (one I hadn't used before) was a wee bit aggressive and I had a lot of scabbing. Again, not so attractive. It eventually all healed up and I felt great. If you decide to do this please find a doctor who has done this procedure before (many times before). Let us know if you go forward with it. Personally, I never regretted it. Ann
  2. Chest pain

    Hi Amberjolie, Esophogeal spasms. I suffer terribly from this condition and it is similar to the symptoms of a heart attack. I have had several attacks. The first one ended me in the hospital for several days while they ran a million tests. It starts with mid chest pain, nausea (vomiting), sweating, overall ill feeling. My scleroderma specialist finally realized what was happening and prescribed me Nitroglycerin tablets. When the spasms occur I place one table under my tongue. It dissipates within 10 minutes or so. This condition come and goes. There doesn't seem to be any predictor so you just treat it as it occurs. I don't know if this is a possible reason for your concerns bit I thought I should mention it. Best of luck!! Ann
  3. Cancer has returned...

    Dear Sandy - I was thinking about how I felt when I was first diagnosed with scleroderma. What was it? How will it change my life? How long will I live? I was so scared. Throughout this journey I came to appreciate all the wonderful blessings that life had handed me and I focused on that. None of us know what lies ahead. What you have shared by your post has strengthened my resolve in appreciating every day I have. I admire your courage. I appreciate your words. I will be thinking of you, your family, and friends. I am sending you a warm gentle hug from northern California. - Ann
  4. Bereavement, Stress, Flare Up - Catch 22?

    San- I am so very sorry to hear about your loss. It sounds like you were very close to your Mum. Your post touched me because of the difficulty in getting your flares under control as a result from the sadness and stress of losing a loved one. I lost both my parents within 9 months of each other this past year and then my beloved German Shepherd died suddenly. I think I am still in shock and maybe for you that is playing a role in recovering. I decided that I couldn't handle the stress by myself, or even from well meaning family members, so I sought help from a therapist who specializes in grieving. I am doing much better and the flares, although still close together, the duration of them is shorter. Everyone grieves differently. I just came to the realization that I needed help. I am sending you a virtual "hug" and hoping that your flares lighten up soon! - Ann
  5. A less than stellar year so far!

    Hi Jeannie! I am so happy to see your post. It has been so long and the forum just isn't the same without you! I can not imagine what you have been through. You are one tough cookie :) I also want to congratulate you on the birth of your grand baby. How exciting and what a motivator to the healing process. Please keep us updated on your progress. Welcome back !! - Ann
  6. Blood Pressure

    Hi Carole - Yes, I can relate to sudden increase in blood pressure. That is actually how my journey with diagnosing scleroderma was for me. It took several years of testing and looking for the right combination of medications. I found a wonderful nephrologist who put in on the right path. I am checked every 6 months. I will most likely be on these meds for the rest of my life. I hope you can find the right medical professionals to help you. Keep us posted! -Ann
  7. SSDI – Social Security Disability

    Kamlesh - can you PM me and tell me where in California you reside? I would love to help you with a referral.
  8. Question about Telangiectasaia

    Hi Nicole - I have "T" all over the place. It developed over the years and once it appears it does not go away. I have them on my hands, under my nails, on my lips, nose, chest, abdomen, and arms. I have had to have laser procedures on my lips many many times to stop the bleeding. Yes, they do come back, but in my case, it is a necessity. Some of them hurt a bit. Actually, when they start to develop is when I notice a bit of discomfort. I have a theory (but this is only based on my own personal experience) that when I begin to develop more "T" I go into a flare. I asked my rheumatologist about this and he had never heard this connection but didn't think I was totally nuts! One never knows :). Anyway, that is my experience. Hope it helps. - Ann
  9. It's official!

    Jeannie - Wow, what wonderful news! :emoticon-congratulations: I can imagine that you are thinking of all the wonderful times ahead. All the best to your daughter and entire family :). -Ann
  10. Hurricane Irene

    I just wanted to take a moment and wish all those living on the Eastern Seaboard of the United States all the best. Please be safe and have all precautions taken -- like all your medications, fresh water, batteries, etc. close by. I know we will be watching closely. Love to all!! Ann
  11. New Forum Format?

    I thought the new format was changed about a week ago or so. I am a bit confused but I will sort this out. Thanks for the reply Joelf, I hope to find the emoticons.
  12. New Forum Format?

    I am wondering if what I am seeing is a new forum format? I can't see anything written about it being changed. Could someone shine some light on this for me? Where are the emoticons? Thanks! -Ann
  13. What's up with my arms and legs?

    Jeannie and Susie - it is scary. The unknown is not a comfortable place to be. I have done my research and it is clear to me that I need a dialogue with my rheumatologist. I will let you know what I find out. Your good wishes are appreciated. hugs, Ann
  14. What's up with my arms and legs?

    Thanks Susie, I had not even thought of skin tightening. During my last appointment with my rheumatologist he mentioned that my skin was changing on my arms (leathery) and I didn't put this together. My goodness, another change for me. I think I may have to try and get an earlier appointment. Thank you so much. :emoticons-thankyou:
  15. For the past three days my arms and legs have been progressively getting weaker and weaker. They feel like they are being squeezed and it does not let up. My arms are so weak that I find it hard to lift things or even open a door. Along with scleroderma I have fibromyalgia. Could this be related to either? It is making me nervous because it is not letting up. Any thought would be greatly appreciated. - Ann
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