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debonair susie

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Everything posted by debonair susie

  1. You're "Sweet Pam"!!! Love you too, :emoticon-hug: of COURSE ;), along with ALL our peeps!
  2. Hi Ladies! GREAT posts!!! OH yes...... we DO know and can relate to the "sausage fingers", hence the typos (those who are at chats know VERY well what I am saying ;) :P lol) Kathy, I had THOUGHT about having my rings re-sized, but instead, I got the ring insert, for the times my swelling subsides; I was also inclined NOT to wear them, though I didn't care much for that either. As for the fatigue, it's important to "listen" to your body and rest when needed; THAT was hard for me to start doing, but quite necessary to do...we get SO wiped out SO quickly, without a doubt! We must do
  3. Thank you so much, miocean and Kathy D for your invaluable input! Any Thing that we might be able to do, that would help members, is DEFINITELY a plus! I'm SO happy the two of you enjoy chat times and feel comfortable there; we ARE friends/family and hope you are able to join us there as MUCH as you are able! :emoticons-clap: Hope everyone has the best weekend possible!!! :emoticon-hug:
  4. Kudos Heather! Thank you for MORE great suggestions! :emoticons-line-dance:
  5. Hi Heather and Welcome! I'm glad you have gotten a diagnosis, but sure understand how you must feel; dealing with pain is something NONE of us do well and I hope you have found something to help with it. You gave WONDERFUL suggestions...GREAT to live by! So glad you've posted and look forward to hearing from you more!
  6. Hi Zeen! First of all, I want to welcome you here and am SO happy you have found our wonderful community of folks :emoticons-yes: So many of us have worn those same boots, with regard to where you find yourself... lacking a definitive diagnosis (es); for that very reason alone, you are at the right place! Here, you will find a wealth of medical information (Amanda was good enough to supply you with some GREAT links), which should help a bit. As Margaret mentioned, she has caregiver knowledge of her son, Gareth's walk with Scleroderma and has shared his issues with Scleroderma;
  7. Hi Judy and thanks for posting. I can appreciate where you are coming from; there are alot of folks who feel as you about chat not being something they desire to do. However, for those of you who would LIKE to join in, it really helps to develop a one-on-one relationship with those who are there for the same reason! (I've made some VERY special friends, as a result of participating in the Chat Room and I cherish them and thier friendships)! :emoticon-hug: Hope your weekend is the best, Judy and all!
  8. Just to let you know.... Twice a year (March & November), there are time changes that take place in the USA (except AZ) and the UK; unfortunately, the USA "springs forward" BEFORE the UK; this occurred the FIRST SUNDAY in March and the UK will do so the LAST SUNDAY in March! Then In NOVEMBER, the FIRST SUNDAY the USA "falls back" and the UK "falls back" the LAST SUNDAY IN OCTOBER. The Hosted Chat Times posted below are for April through October; November through February.
  9. GREAT suggestion Jo!!! Same here All!! I would be happy to try and do the same
  10. Mdduk, Your wife is SO fortunate to have you as her advocate and we thank you SO much for keeping us updated, despite these (obviously) very stressful times. Though I am VERY relieved to read that your wife is responding well to her present treatment, you have EVERY right to feel as you do about her (lack) of appropriate treatment...prior to this time. I hope you are able to sound off (if you should desire) to those responsible; if NOT, we have VERY broad shoulders (on these forums) and GREAT empathy...for you, your wife and family :emoticons-group-hug: We will continue to keep a
  11. Great Warning to pass on, Kathy....Thank you! I'm REALLY glad you still have enough feeling, that you COULD sense that the heat packs were too hot (in your slippers) and took them out beFORE they could do damamge to your skin/feet! Funny as it may sound, there are ALOT of us who CANNOT sense hot/cold differences and really have to be cognizant of that fact! Hugs to You!
  12. Hi Miocean, Thinking of you today as you trek through your appointments, getting ever closer to a lung transplant. I hope this gives you comfort, what I'm going to say... The family of the kidney donor would be VERY pleased if they knew of how you have "passed it on", through your support of others, just here on the Scleroderma Forums! You are a wonderfully, caring, giving and special lady! You have shared (here), for the benefit of all members, your "walk" ...through trials, your trek up to and (including) your kidney transplant, it's effects and how it has added to your bet
  13. OH MY!! Bless your hearts, both Amanda and Shelley, (Jo too) ! You ALL are VERY Special to me and are GREAT Role Models here, on the Forums I thank you SO much for your complementary inputs! Jo, for a "one-fingered typist", you put MY typing to SHAME :P lol (By the way, my Friend, I thank you SO much for joining Friday Chats, whenever you are able). Now Kathy, I am REALLY appreciative of YOUR very valuable input, concerns and thoughts; this is EXACTLY what I was hoping for!! I can appreciate how frustrating it can be, to feel left behind in the flow of conversation; We do NOT
  14. Hi Everyone!! I am posting this to get information and would REALLY appreciate your input, if you would....PLEASE!! It has become necessary to find out the "Interest Level" of all of you, where the Hosted Chat Rooms (namely Tuesdays and Fridays, are concerned). 1) Are you able to get into the Chat Room(s) of choice, or are you having trouble? 2) Is there a BETTER time that might work BETTER for you? ( I ask this question because we like to accomodate you, whenever possible). There are folks who work, have families, other commitments, etc and the present Hosted Chat times may ju
  15. Hi Amy! It is truly very nice to meet you! I am REALLY glad you have come to this forum, where folks are wonderful and VERY supportive, I've found! Perusing the information under medical, (as well as the great links Jo provided you) may help you better know more about your illness. Like Judy t, I'm unable to speak to you, (first-hand) about your illness, but I am hopeful you will gain much insight before long. It really IS great, knowing you are not alone, having others to relate to/with. (What a beautiful photo of you and your daughter, by the way)!! Please keep us posted
  16. Thank you so much for letting us know the latest, miocean. Your strong will and effort, to keep yourself in the best possible condition, has definitely benefitted you in the process....Way to GO!!! Kudos to BOTH you and your husband
  17. VERY pleased to hear you are stringing together more good days than bad! Aaaaaw Buttons...I'm SO sorry your holiday trip had to be cancelled, but I hope you are able to make up for it later on. Continued better days ahead for you
  18. Dearest Shelley, My heart goes out to you, as you and your family mourn the loss of Gene; May you feel comforted in knowing he is at peace.... I know you miss him terribly, but am also sure you have wonderful memories of your special life shared together. Much Love to You Susie
  19. Though I've not posted on your thread, until now, I have had you in my thoughts and am sending you the best, where the barium swallow and endoscopy are concerned. :emoticons-group-hug: Your doctor is doing the appropriate testing and I feel confident you will be well cared for! Thank you for the update and please keep us posted on their findings?
  20. Hi Karen, I am SO glad you joined this great forum, though I'm sorry for the reasons you have been experiencing. The ladies who have posted before me are VERY well-versed to speak to your issues and I'm sure all they have offered you will give you comfort, as well as confidence to better deal with your health issues. As has been suggested, a Scleroderma Specialist is best able to treat/help you with these issues. Please keep us posted/updated? xx :emoticon-hug:
  21. Hi shazzer and I welcome you to these forums! I am VERY relieved you opted to post here, as what you have been experiencing is what many of us have also experienced, albeit part/parcel the varied symptoms. I too, started out withthe raynauds symptoms, which turned out to be a precursor to what would be other diagnoses. I AM concerned about the symptoms of the raynauds that you spoke of; with the ongoing "bluish/cold fingertips, it's important (attack of no, that this is addressed ASAP. As you may already know, it is SO important to keep all affected areas as warm as possible, even if
  22. I too, am anxious to hear the outcome on these gloves! I sure Hope you, Marsha, were able to get this done, as it would be a great coups! :emoticon-hug:
  23. Hi Xenia, My sentiments are as Jo and Amanda's. It can be very frustrating to be experiencing such symptoms and yet not receive affirmation or confirmation of SOME sort. I REALLY empathize with you, as I'm sure so many (members of this forum) can. I sure hope that you are able to get somewhere very soon, with regard to your symptoms. In the meantime, I'm sending :emoticon-hug: s your way!
  24. That is EXCELLENT news, Lisa!!! I'm VERY happy it's working so well for you :terrific:
  25. How very GREAT it works so well for you, SWEET!!!
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