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Catty

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Posts posted by Catty


  1. Annie...you should always take antibiotics if you have an infection. I just wanted you to know that every time you get an ulcer it is not automatically infected but the skin is open so you have to be so careful to keep it from getting infected (like keeping it covered with a bandaid and keep it very clean).

     

    I have never had a calcium deposit go away on it's own myself. Yes the skin can heal up over it again but the deposit is still there unless you had it removed or it came up so close to the surface that you could actually roll it out yourself. Calcium deposits can cause ulcers and infections also. Good luck hon!

     

    Catty


  2. Hi Annie

     

    I have had about 15 operations for calcium deposits and that is the only thing that has ever helped me with them. More than likely hon you had the calcium deposit first that caused the ulcer.

     

    Doctors give us antibiotics for everything it seems. Antibiotics are for infection and that is all the antibiotic will help you with. They will not heal the ulcer or make the calcium go away. It is important that you take it to ward off infection, you're in enough pain, you sure don't need an infection also.

     

    If you have surgery trust me when I say that you don't want to feel anything,an ulcer is horrid pain. If you get that calcium cut out then in time the ulcer will heal but the calcium being there will keep the ulcer from healing. So if I were you I would go the route that will be as painless as possible for you. I wish you all the best hon....Hugs


  3. Sarah...that is ALL wonderful news! I am so happy for you. I am also very PROUD of you for not smoking!

    I knew you could do it...keep up ALL the good work now. Not smoking anymore is a lifelong decision....help yourself to get well again. YEAH SARAH!!!!! YOU GO GIRL! :emoticon-hug:

    Catty


  4. Sarah, please stop smoking! PLEASE! That is the worst thing you can do for yourself. When you smoke a cigarette your blood vessels constrict, okay?

     

    If you have Raynaud's you already have a problem with your blood vessels. You have no idea how bad smoking is for someone with scleroderma plus it is not good for your children to inhale that second hand smoke. Sorry hon, but I tell it like it is. Why? Because I care and I want you to get better for yourself and for your children. Listen to me now or else I will have to get even more assertive! :)

     

    Catty/Shirley


  5. Hi Sarah....the first thing I want you to do is to stop worrying because stress is not good for us. You said you did not have it in your lungs...that is a GOOD thing. I have had SD for close to 30 years now. Back then they did not have any med's for it at all so I took NOTHING except heartburn meds.

    My symptoms were a lot worse than you sound like yours is hon...I am in remission now. I know you are scared sweetie especially having young children.

    I also worried about the same thing but here I am still alive and my children are grown. Take life one day at a time...get up and enjoy life as much as you can everyday. Some of your days may be terrible then you will have many that are not as bad as others are. Stay away from stress...if you have people in your life that cause you nothing but trouble and grief....get them out of your life ...IF POSSIBLE. I had to do that myself.

    Take care of YOU and your FAMILY. By the wway I have had over 15 operations for calcium deposits.

    Good luck!

    Shirley


  6. I know what you mean about your fingers I also have them in my fingers. I started out having them in the tips of my fingers but I don't have them there anymore they are all in different places in my fingers but are not terribly noticeable unless I point them out to people. I use a lot of bandaids.

     

    The Plastic Surgeon that took mine out in my arm did not want to do it so I could not recommend him to you. He had Never done that type of surgery before.

     

    You just need to ask around to see if you can find someone who knows something about SD at least although my doctor did not know anything about SD and did a good job. The doctor that did mine had never operated on anyone with it before. I know how scared you must be to find a good doctor and in making the decision to do this surgery but you are the one who suffers with it and you will have to make that decision however hard it will be. I feel like all calcium deposits are close to arteries and nerves. I found that with the doctors I went to if they did not want to do the surgery that they would always come up with an excuse

    not to do it BUT I was at the end of my rope hon...mine was large...infected...killing me...making my life miserable. I had to do something. I was living off of antibiotics. Good luck with your decision and know that I do know exactly what you are going through with.

    Hugs,

    Shirley


  7. Hello...I am so sorry you are having this problem sweetie. You called it a calcinoid mass...I am assuming you mean Calcinosis?

    I had a huge one removed from my lower left arm...was 6 inches long...about 6 inches wide. It was huge. I did fine with mine...a plastic surgeon took mine out...I live in Alabama. He did not want to do it...I insisted. Where it is located on your body is very important.

    I wish you the best if you have it removed. Surgery is the only answer for these things. It is also very important to be sure to get it ALL out if possible. In saying all of this...I am assuming you are talking about calcinosis.

    Good luck!

    Shirley aka Catty


  8. Wow!!! I also found that picture of that poor woman with the calcinosis so bad on her buttocks as well as her elbow.

     

    I don't have a problem at all compared to her! I have had most of mine removed. Thank goodness. Those pictures were so....so... so sad.

     

    My heart went out to her. When we think we have problems we can always find someone else that is far worse off.

     

    It is a shame that they cannot find a cure for calcinosis.

     

    Hugs,

     

    Shirley


  9. Hi hon thank you for posting.That is what I was trying to find out from all of you who actually have this disease before I see my doctor.

     

    I KNEW I could not handle stress because I know what it does to me. I believe that stress helped cause my SD or else played a HUGE part in it.

     

    I don't want this disease to get any worse with me now that I am in remission. I have suffered long and hard enough nearly 30 years now.

     

    All of us have. If anyone else pops in here please tell me how severe stress effects you.

     

    Hugs,

    Catty


  10. Thank you Snowbird, I appreciate your input. I was mainly concerned about the stress making my SD Worse and I don't want that.

     

    I am not taking any med's at all so I am not one to want to take medicine...I am quite the opposite. My doctor is out of the country right now. He will be back in a couple of weeks then I will ask him what he thinks about it. I have a good friend who has had SD for 30 years now. When she is under severe stress she has a pill that helps her relax and she may take it for 2 or 3 days then she stops taking it because she is like I am in that we don't like taking meds. I just want to protect my body from what the stress can cause. I will let all of you know if he thinks I should have something to take during these stressful times.

     

    Big Hugs to all,

     

    Catty


  11. Hi Ann,

     

    Did something happen to your ribs ? Or did I overlook that? If it hurts you to breath deeply....did you ask him if it could be Pleurisy.

     

    I have had that before and it was AWFUL! The doctors didn't do anything for me. I did take anti-inflammatories (with a meal) for a bit but I could not take a deep breath at all. MY pain was in my ribs...left side too.

     

    Just a thought. Hope you feel better soon. Go back to see him again and ask him that. It is awful that we have to do that but I have done it many times.

     

    Hugs,

    Shirley


  12. Thank you Shelley and Lisa

     

    Shelley....You have the ability to make a person understand things so much better. Thank you for that.

     

    Your words made so much sense especially saying that it may take up to 2 weeks to get over this. I am already better.

     

    Crying does make me feel better.

     

    Also yes it could have been me and I know in time it will be me. Carol (My neighbor) had Lupus and got pneumonia. She was on a lot of medicine with one of them being a Chemo drug ( Meth something....cannot spell it? ) Anyway her pneumonia would not respond to antibiotics.

     

    Also as far as you getting upset over your Parrot I ADORE my pets and I would have been a basket case. So I totally understand what you mean about your grief. Thank you Shelley...I am so sorry you had to lose your Parrot hon. I know that was so painful for you. Sending you BIG BIG HUGS ((((((((((HUGS))))))))))

     

     

    Lisa, going by what you said that is why I wonder if Severe stress CAN make us worse. A normal person can deal with stress better then we can and it may not make them sick whereas it would us that is my concern. If I was NORMAL and I was under stress I would just go to bed and cry until I got better. I would not want to take anything as far as medicine goes but with me having SD and it being in remission....I want to keep it there.

     

    Thanks again,

     

    Shirley


  13. Amanda and Jeannie. Thank you for answering me. The reason I ask this question is because I have noticed before that severe stress makes me sick I get very very tired depressed, I am not that way at normal times. I am in remission with SD and have been for quite a while now. Losing my neighbor did make me think of my own mortality because we both had connective tissue diseases and we had a bond between us because of that you know? I don't want severe stress to cause my SD to get active again you know? That is what scares me. Stress can kill us.

    That is the reason I thought I might need something to calm me down to help me through situatons like this then stop taking it because I don't like taking medicine unless I absolutely have to. I am afraid that severe stress can make my SD get worse again or come out of remission....

    That is my concern....

    Thank you both so much,

    Shirley


  14. I wanted to ask all of you how severe stress effects you? When I say severe stress...I mean like having someone pass away that you loved.

    It seems I cannot handle severe stress at all. My next door neighbor recently died from Lupus...she had had Lupus as long as I have had SD...

    over 25 years. I cried off and on for 3 days...not constanly but off and on...I couldn't sleep at night either. This does not sound normal to me.

    I just had to ask all of you how severe stress effects you? I am blaming it on SD. I feel like I need to have something on hand to take whenever something like this happens so it will not make me so sick. I feel like my Dr. will not understand.

    Hugs,

    Shirley


  15. Thank you for getting back with me...

    yours sounds like an ulcer to me. Pain is not the word for it with an ulcer.

    That cream sounds like it was a prescription..I am glad that it is helping you some.

    I never had that prescribed for me as many ulcers as I have had so that is why I wondered about it....

    Get to feeling better now...

    Hugs,

    Shirley


  16. Why did he prescribe you Sulfa Cream? Did he say? I have never heard of it before....how is it suppose to help you?

    Has it helped you? Is it for pain? A lot of questions...I know...:) The reason I am asking is because I have Calcium deposits...many many of them.

    Hugs,

    Shirley


  17. I have had and still do have calcinosis...the only answer to them that I have found is to have them removed...If your Dr. will remove all that he see's there is less chance it will come back in that same place. I have some on my upper buttocks...does not hurt me while sitting down but when I turn over in the bed at night...I feel them.

    Good luck!

    Shirley


  18. Thank you Judy for bringing this subject up. I also have this problem and I just deal with it the best I can. I had a feeling that there was not anything that could really help me. It is very embarrassing. I have to stay at home a lot because of it but I still get out. My problem is worse in the morning hours but I don't know why. I have never told anyone about it. I just had to let you know that you are not alone by any means.

     

    Hugs,

    Catty

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