
shennen0820
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About shennen0820

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Senior Bronze Member
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Location
Watertown, Connecticut
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My vitamin D is also low. I was taking just vitamin d supplements for a few months and was retested and found to be low yet again. I was then told that I need to also take a calcium supplement as you need this to help absorb the vitamin D so I now take the vitamin D, a calcium pill with vitamin D and a multivitamin that also contains vitamin D every day! I hope next time it will be up! Plus I am very tan so I know I am getting what I can from the sun!
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If you take calcium along with d, the D will help to regulate the absorption of calcium.
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I was told by the dermatologist that the darkened area are changes in blood vessel caused by sclero...
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i had to have mine made bigger...
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Sister just diagnosed--looking for answers
shennen0820 replied to aridge's topic in Sclero Forums (MAIN)
I am also in my 30's and was recently diagnosed too. I have one child prior to being diagnosed and want to have another. My gynecologist has already sent me to a perinatologist (a high risk pregnancy doctor) and according to him the thing that bears close watching during pregnancy is the blood pressure because of the kidney issues with scleroderma; so possibly being seen weekly for blood pressure checks. I would suggest that your sister (after going to John Hopkins of course) get set up with a high risk pregnancy doctor also. You are right and there is not a lot of information on pregnancy an -
Alice how long have you been on the cellcept and how long ago were you diagnosed?
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I do have to say in the beginning of new diagnosis (July 2008) I too was doing tons of reading just like you are and I was also driving myself nuts. I have backed off a bit on the reading and research and I try to take one day at a time, one test and result at a time, and one doctors appointment at a time. Please do get educated but try to give yourself a break from all of the research and relax. Stress makes everything 100 times worse.
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glad to hear that the permacath placement went okay for you...keep us posted about the photophoresis!
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Mine also is low and I have been taking supplement for 1 year and it was again low this year. My doctor suggested taking calcium with vitamin D, a vitamin D supplement, and also a multivitamin with vitamin D.
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I also developed sclero symptoms approx 5 months after having a baby...
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Hey Paula, I'm glad to hear the the insurance company approved your treatments. Check with Walt. I know he has been having photophoresis treatments and is from Canada I believe. Are you going to be having your treatments at Yale? I think you said you live in Connecticut as well.
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Thanks everyone...glad there are others in the same boat!
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My biopsy came back positive for morphea and the dermatologist had the report changed stating scleroderma to have more pull with getting things approved with the insurance company.
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Anyone have an answer to why sclero is making me look tan? If one more person comments on what a nice tan I have I may scream! I guess that may be the only bonus to having sclero!
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I am having the same trouble finding a rheumatologist too! I have an appointment with another one in May. Hopefully this one knows something about sclero!