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I've had autoimmune symptoms for a few years, which had started in my younger teenage years. They were always the standard low-grade fever, muscle pain, high ANA (always around 300 when tested) , swelling and Raynaud's syndrome. None of the doctors I've seen knew the cause for these symptoms, and I eventually learned to adapt to them. Recently, I've been overwhelmed by pain, having a hard time with general motor functions (and was actually tested for motor neurone disease (ALS) ) hair loss, weight loss (I generally have a hard time keeping on weight), fingers becoming more misshapen, high heart rate with low blood pressure, sleeping a lot and I started to develop lumps on my fingers that push out white hard rock like things. In the past, years ago, I was screened for multiple sclerosis (MS), Lupus, scleroderma, rheumatoid arthritis (RA) and thyroid issues. At that time, all the information they got years ago was that my ANA stood around 300 with a speckled type, my anti-centromere B was high, my A/G levels were off and my hemogoblin was off. The other anti centomere was fine and the information was inconclusive and I was not tested for those things since. I am just wondering if this forum has any ideas of what could be happening and give any idea of what direction I should be going in. Especially since things seem to be getting worse and a recent doctor I've seen said that I reminded him of his family member with CREST and said I should go to Mayo.
Hi I'm 17 and I was recently diagnosed with morphea. So far I obviously have a mark on skin and I'm also experiencing fatigue, joint pain and eye strain. I'm just wondering what tips anyone has on working through it and what I have to expect. Thanks !