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  1. Hello everyone I hope you are all good. As the topic header suggests I am new here and new to Morphea. My story, I'm 24, from UK and female, I was diagnosed with Morphea two years ago after being scared to go to my general practitioner for almost two years prior to my diagnosis in fear of cancer and my first show was on my chest below my collar bone. I had no idea what was going on in my life at that time and was going through some pretty turbulent stuff so I put the strange 'bit' to the back of my head until one day I figured I had best get it checked. So I did just that; I had the usual wa
  2. At the age of 3, I developed localized scleroderma morphea, I was never really sure of what I had, or even was concerned until a couple years ago when people started laughing and pointing at me like I was abnormal. Years passed and I started doing more research, wondering if it could one day become internal, and how common this was because no one I ever met looked like me. I have it on my hip, and all over my back. I also have vitiligo. Now getting older I'm having more grown up questions like, will I ever be able to give birth and have a child of my own, and even if I can do that, will they
  3. Hi Everyone I have only recently found this site and am finding the information really helpful. I am 54 and was diagnosed with morphea by my general practitioner a couple of years ago when I developed a large oval patch with lilac edges under my breast followed by a couple of others on my trunk. I had already suspected this was the diagnosis after looking up my symptoms on the web and readily accepted the reassurance that it would clear up in time and no treatment was necessary. Over time more patches have developed all on my front and back plus one patch on my inner wrist. Some of the
  4. Hello Everyone, I am 24, from Ohio, and have widespread plaque morphea, the start of linear morphea, lichen sclerosus, and a lot of joint pain and fatigue with hands being swollen frequently. I am a biology and sociology college student and physically active (despite the pain) who currently works in the medical field with aspirations to attend med school. Sorry for the length of this post, but I wanted to give you the full picture of my sclero-journey... This is my first post in the Sclero Forums despite my diagnosis about a year ago. I have found myself extremely frustrated in the l
  5. I just wanted to take some time out to say a huge thank you to everyone on these forums. Before I found here, I felt like the only guy in the world going through my problems. You honestly don't understand how much it's helped just having people there that I can talk to and who actually understand what I'm going through. I don't feel so alone anymore. It's been a very difficult year with my personal problems and I've still got a really long way to go. In all honesty I still hate my morphea marks when I see them in the mirror and still long to be just like every other "normal" guy. I'm c
  6. I'm a 25 year old female. About 3 years ago, I began to develop scar tissue on my abdomen. It showed up in the shape of a pair of lips (funny)! The next one showed up on my breast, when it covered 1/3 I finally went to the doctor. They prescribed many fungus creams, to no avail, and finally did a skin biopsy of my breast. I was told it was scleroderma. I finally went to a specialist about a year ago. My opinion of the guy is not high. He didn't run ANY tests... and I have bad teeth, always have, he asked if I've ever done meth, when I responded that I haven't, he says, "Are you sure? You k
  7. Since joining these forums I can't explain how much so many people have helped me, so I wanted to start by saying thank you! I'm lucky enough to be getting a consultation and application lesson for camouflage makeup to cover up my Morphea on my stomach. Trust me I know I'm incredibly fortunate that so far my experience with Morphea is a mild cosmetic issue and for that I'm grateful but seeing the way its changed my skin does get me down. I'll be the first to admit that I care about looks way more than I should but please try not to label me vain, shallow or superficial. I'm still young and
  8. Morphea patches on the right side of my abdomen.
  9. I've only just joined these forums recently but you have all helped me so much. Someone said to me, "everyone on here has experienced loss in some way". Scleroderma has certainly taken a lot from me...but today I took something back. I finally got up the courage to go swimming. I was so scared to expose all the marks Morphea has left me with but more than the fear, was anger at this disease breaking me down to the point of stopping me doing something I used to love. So I may not be in the shape I was some years back and I've got a long way to go till I get to where I wanna be but toda
  10. Hello All From spending time on the forums I've noticed that most people post about systemic forms of scleroderma as opposed to localised forms of scleroderma. As I have both localised and systemic scleroderma I thought I'd give a shout out for the localised forms, in particular morphea, as that's the one I have. I have uploaded onto the Sclero Forums Photo Gallery various photos of my morphea patches some of which are rather large. I think in total I have over 20 patches on my legs and there seems to be a new one everyday. The ones on my thighs are the largest and they itch unless I keep th
  11. Morphea patches on calf. Amanda Thorpe
  12. More morphea patches. Amanda Thorpe
  13. Massive morphea patch Amanda Thorpe
  14. More of my morphea patches! Amanda Thorpe
  15. One of many patches of my morphea! Amanda Thorpe
  16. First of all sorry if this all makes no sense, I am not good with wording haha My name is Hayley I am aged 23 and live in Bristol, UK. I have had Morphea since I was 7 years old. My mum discovered it and we started going to the hospital on a regular basis. So I have a very deep indentation on the right side of my head it is about inches (hair does cover it but have to wear hair certain way to hide the dip) I have no fat tissue or muscle in my right temple so it dips in (also have to have a heavy fringe to cover) Large area of back and collar area is also discoloured and loss of muscle
  17. First of all sorry if this all makes no sense, I am not good with wording haha My name is Hayley I am aged 23 and live in Bristol, UK. I have had Morphea since I was 7 years old. My mum discovered it and we started going to the hospital on a regular basis. So I have a very deep indentation on the right side of my head it is about inches (hair does cover it but have to wear hair certain way to hide the dip) I have no fat tissue or muscle in my right temple so it dips in (also have to have a heavy fringe to cover) Large area of back and collar area is also discoloured and loss of muscle and fa
  18. Hello all, I have been pondering a great many things since researching this autoimmune disorder. I am an overweight individual with morphea and I am on track to becoming a healthier me in just general. Most importantly going to build some muscle. Looked and have planned all the exercises and I have built exercises based on my goal and limits. I know to consult with a doctor with exercise regiments that isn't a problem. The question, I guess, is there any sort of studies out there relating to this condition and building muscle? Mostly I am focusing on the facts that point to that morphea
  19. Hi, I'm new here and my question is about getting permanent hair removal. I'm 20 years old; I have been diagnosed with morphea last year, though it started when I was about 15, but then I thought it was just some weird skin coloration. Since it's on my lower back I didn't really look at it often and only in a mirror... but now I know what it is and kinda freak out because I have had some veiny thing on my back for the last year or two (I didn't show it to the doctor, I didn't think and I was in shock), but higher, kinda on my shoulder blade. So now I'm starting to think that I should be caref
  20. Hi, my daughter has a type of rare morphea called Atrophoderma of Pasini & Pierini. She is 16 years of age and was first diagnosed 2 years ago. The red marks on her body cover 2/3's of her back, buttocks and thighs. When initially diagnosed she also had a linear morphea down one leg but this has disappeared. I am extremely concerned as the marks on her back are now starting to sink and I know that once this has occurred the process is irreversible. We see a consultant once every six months and he has prescribed topical steriods in the past although this has had no effect in halting th
  21. Hi, I'm Sara... I'm 35 and I was diagnosed a couple of years ago as having morphea. My symptoms are very mild compared to most other people on here, but thought I'd say hello anyway! :) I started off with a "bruise" about the size of a 50p piece on my right calf - that never went away! This was when I was pregnant with my son who is now 7 1/2 and over the next few years it spread until it covered from my ankle all the way up to my calf (my doctor was less than interested and huffed and puffed... in the last couple of years it has spread more rapidly and now stretches all the way up to the mi
  22. Hi I have morphea but would like a tattoo, does anyone know if it is safe to have one? You may think I am mad wanting a tattoo when I have this disease but it is hard to describe. I want one as it's something I want on my skin not something I have to accept and deal with, if that makes any sense, not like morphea where I have no choice what happens and how it spreads etc. Can anyone help?
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