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Found 33 results

  1. I hope some of you can give me helpful information. My brother has been diagnosed with several auto immune diseases. One of them is Raynauds. Right now his fingers are in a terrible condition: black, drainage from around the nail, sensitivity in the fingers, etc. They are a mess. He is wearing gloves, on several medications and is being seen by a rheumatologist. Do any of you have this type of condition with your fingers and to the extreme like his fingers. We are very concerned that he may lose some of his fingers by just the appearance. Any helpful comments in this area would be greatly appreciated. Thanks
  2. I am having an awful time with my hands and feet so far and It's not even "winter" yet!! I started a very part time job a couple months ago, I work one day a week LOVE IT!! They keep the office at 62 degrees :( !! Yesterday I was sooo cold I could NOT get warm. I can't wear gloves or mitten at work because my job is laying out a newspaper and I need my fingers free to be able to work.)!! I came right out and said several times, "Oh, its freezing in here I can't warm my fingers up", but to no avail. I ended up going to the bathroom and running my fingers under warm water. The problem is this, well there are actually two: Once my fingers spasm I can not get them warm, the color is either red or black! I just saw the rheumatologist 2 weeks ago and he noticed the capillary delay and mentioned it to the PA working with him. My fingers are constantly in pain or numb.. Also, I have been so stiff, I hurt all over every joint! I just want to cry. :( I am not sure if the swelling in the fingers and hands is due to the Raynauds or if it is sclerodactyly!! ((SCREAMING IN FRUSTRATION)) The other problem I have is how can I get them to turn the heat up in the office without going into such labored detail about my illness :( which they won't understand anyways? I fear this is going to be an awful long winter up here in the north. <Sigh>. I hope everyone else is keeping warm and symptom free. I have fallen into the pity pot and I can't seem to climb out. I am sick of being ill.
  3. From the album: Jalee's Symptoms

    I was told that this was Raynaud's even though it's just in the nail bed.
  4. Good morning everyone, I hope this finds you all well. As fall approaches in the Northeast my Raynaud's is getting more active. I am on my third medication for the symptoms. I am about to try Dynacirc (a blood pressure medication) and I am wondering if anyone here has tried or is on it, and if so have you had any relief from using it? The next step if this one doesn't work is the generic for Viagra or Cialis. Has anyone been on those? I am just wondering when I should give up and say I fought a good fight! I am worried about side effects from these medicines. As my Scleroderma expert said, sometimes some people just don't respond to any medications. I wonder if I am just one of those people.
  5. Hi All, Well, after having a little scare with my Raynauds, and a short spell in hospital, I'm not taking my Raynauds a little more seriously than I had previously. In line with this, I am looking at options to keep my hands warm, especially at work (at home, I can use a hot water bottle - easy!). I work as part of an IT Support team, and as such, I am sat at a desk for most of the day, using a mouse and keyboard. My biggest issue is keeping my hands warm whilst working. Yes, I can take my hand away from the keyboard/mouse to warm it up - but this affects my work - I can't work whilst I'm trying to warm my hands up (at least, not efficiently). I would be really grateful if anyone has any information/feedback on things like : Heated Mice Heated Mouse Mat Heated Arm Rest/Support Heated Keyboard I've had a little look-see around the internet, but as I am UK based, I think I may struggle to find anything here, as all I seem to find are links to US websites. Thanks for reading, and here's hoping one of you knows something about these heated pieces of IT equipment - which I'm hoping will be the saving of my fingers - literally !! Take care out there LD x [Moderator Note....if you have the actual details of any products, please send them to Lil Dee via a PM. Thanks!]
  6. Hi, I was diagnosed with Secondary Raynauds in January of 2011. It was brought to my attention by a friend of mine that my Raynauds is not the typical presentation of Raynauds. I get attacks when I am taking a bath and my feet are in the warm water. I also get attacks after my legs would get all red and there would be inflammation of my skin. It would almost seem the heat triggers my Raynauds just as much as cold does. I also get the purplish/blackish coloration on my knuckles when I am cold or in warm water, but not the tip of my fingers. I also get it on the palm of my hand nearest to the thumb digit. I am wondering if anyone else experiences this; my friend's rheumatologist said it didn't sound like Raynauds.
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