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Found 78 results

  1. Hi, I was diagnosed with Secondary Raynauds in January of 2011. It was brought to my attention by a friend of mine that my Raynauds is not the typical presentation of Raynauds. I get attacks when I am taking a bath and my feet are in the warm water. I also get attacks after my legs would get all red and there would be inflammation of my skin. It would almost seem the heat triggers my Raynauds just as much as cold does. I also get the purplish/blackish coloration on my knuckles when I am cold or in warm water, but not the tip of my fingers. I also get it on the palm of my hand nearest to the thumb digit. I am wondering if anyone else experiences this; my friend's rheumatologist said it didn't sound like Raynauds.
  2. Husband has scleroderma and rheumatoid arthritis that has been well managed with usual meds. No history of heart, lung or kidney involvement. Mostly skin, joint and esophageal problems. 10 days ago developed sudden excruciating low back pain and severe nausea. In hospital on pain and anti-nausea meds, but nobody can figure out the cause. He is in a teaching hospital where his Rheumatologist practices but she hasn't seen him yet. He had endoscopy today which showed no changes that would cause this problem. MRI of back showed nothing. I'm thinking perhaps a bowel obstruction or pseudo obstruction but doctors say no because his stomach isn't distended. He hasn't had a bowel movement in 4-5 days but they blame that on opiods. Doctors are totally stumped but he has yet to see a doctor who knows much about scleroderma. I'm not sure if there is such a doctor at this hospital. In the past he has been seen at Boston scleroderma clinic but in no shape to travel there now. Does this sound like a scleroderma related illness? Any thoughts? Anybody out there experience similar symptoms? He was very active and doing great until this. Thanks for any suggestions you might have.
  3. Has anyone else had an Esophageal Manometry? If you have, what did your results show? The nurse practitioner who did the test said that a few of my swallows showed a scleroderma type of pattern but then the others were all normal. I'm just trying to think of what would make it not allow me to swallow at some points and yet be fine with the next swallow. She thought maybe my muscle in the esophagus was getting used to the tube; however there were times when there was a normal swallow and then an abnormal one.
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