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Found 10 results

  1. Fat Grafting for the Treatment of Scleroderma. Fat grafting in scleroderma patients likely improves skin manifestations by recreating fullness, correcting contour deformities, and improving skin quality. PubMed, Plast Reconstr Surg, 2019 Dec;144(6):1498-1507. (Also see En Coup de Sabre) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  2. Linear scleroderma "en coup de sabre" with extensive brain involvement-Clinicopathologic correlations and response to anti-Interleukin-6 therapy. The interleukin-6 (IL-6) receptor inhibitor tocilizumab was used and the patient improved dramatically, likely reflecting the drug's effect on the replenishment of endothelial progenitor cells. PubMed, Orphanet J Rare Dis, 2019 May 16;14(1):110. (Also see En Coup de Sabre) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  3. Localised scleroderma en coup de sabre affecting the skin, dentition and bone tissue within craniofacial neural crest fields. SCS conditions seem to extend from the skin in the depth to the sella turcica area within neural crest fields. PubMed, Eur Arch Paediatr Dent, 03/07/2019. (Also see En Coup de Sabre) This item was post´╗┐ed in the ISN Newsroom. ´╗┐Please check the newsroom daily for updates on scleroderma and other related articles.
  4. My name is Blair. In June of 2018 my daughter, who was seven years old at the time, was diagnosed with En coup de Sabre and has been on treatment since. Upon doing my own research, I have found that there is a possible link between silicone breast implants and auto immune diseases such as Scleroderma. I am wondering now because I have silicone breast implants and breast fed my daughter when she was a baby if there is any sort of connection between the two. Just reaching out to see if anyone else has this situation.
  5. Ophthalmic findings in linear scleroderma manifesting as facial en coup de sabre. In addition to the established feature of enophthalmos, the oculometric evidence suggested smaller eye and rectus muscle involvement, interpreted as a secondary negative trophic effect of the overlying skin disorder on eye structures. PubMed, Eye (Lond), 07/04/2018. (Also see En Coup de Sabre) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  6. Progressive Hemifacial Atrophy and Linear Scleroderma En Coup de Sabre: A Spectrum of the Same Disease? There are certain differences in neurological and ophthalmological changes in the diseases. PubMed, Front Med (Lausanne), 2018 Jan 31;4:258. (Also see En Coup de Sabre) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  7. Hello - I'm new to the group. My daughter (9) was just diagnosed by her dermatologist with plague-type morphea. She has a 2x4 in dark patch on her forehead with an indentation that runs up into her hairline. After doing some research, it appears to be "en coup de sabre". She is going to see a specialist on August 27, but I am desperate to learn more about what type of testing she may go through as well as potential treatments and outcomes. Any information/advice would be greatly appreciated. ~jena
  8. So my life has been hectic, we moved across the country 6 months ago and are trying to adjust to the new place. I think my indentation line on my forehead started before we moved, it was barely apparent. I think it is becoming more apparent and I tried to take the best picture I could. It comes across from my hairline to the start of my right eyebrow. You can really only see it at a certain angle and in certain light. I have no other symptoms other than my right eye aches sometimes but not too bad. I am going to make a doctor appointment for my physical exam and bring it up then. Is it likely
  9. Hi everyone. Firstly I'd like to say how truly nice it is to "meet" others just like me. Until last week, I thought I may even be the only living person with en coup de sabre. So thank you all for gathering here. Secondly, I'll give a brief overview of me; My name is Amy. I am 29 years old, mother of two (a 7 year old and 4 year old, both of which are perfectly healthy specimens) woman from Australia. I had zero symptoms of scleroderma en coup de sabre until I turned 15. At that point a blue line appeared on my forehead that quickly changed to brown and the inch of hair above it fell out.
  10. Hi, I was diagnosed with en coup de sabre in February 2012 after I found a dent on the right hand side of my forehead one evening. A few days later I noticed quite a lot of hair loss so went to my doctor, who was bamboozled by this, and sent me to a dermatologist. A couple of weeks later, after an MRI scan, blood tests and biopsy, they told me I had en coup de sabre. I am currently on Mycophenalate (Cellcept) for this and see my consultant every 6 weeks to check the progression of this disease. My consultant was trying to find some one else in the UK with the same condition but as yet
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