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Found 4 results

  1. Case Report: Characterization and Treatment of Unilateral Facial Muscle Spasm in Linear Scleroderma. We report a case of linear scleroderma associated with spasm of muscles innervated not only by the trigeminal but also by the facial nerve. PubMed, Tremor Other Hyperkinet Mov (N Y). (Also see Localized Scleroderma: Linear) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  2. Hi everyone, my name is Ben, and I've had a dark orange colored rash that is dots surrounding my nipple on my chest and that goes around to my back. I have a lot of things that can be linked to autoimmune disease. And I am very scared of that, but also there are so many questions I have about this condition. Maybe some of you guys can help clarify things for me? 1)I know I am young to be using collagen, but I actually do put it on my face. It has other moisturizers in it. And I am scared that it may cause it to come back on my face. Mine is currently on my chest and is probably my only physical insecurity. I heard it can deform people so I would die if it came back on my face. Does anyone that has morphea also use collagen? I heard that the cause may be an overproduction of collagen so should I stop using collagen on my face? 2)My dermatologist said it is very unlikely that it will occur any place else. I noticed the "rash" when I was like 7, but just went to a real dermatologist to get it checked. I was misdiagnosed as having tinea versicolor. She said it looks like a confetti-type localized scleroderma and said that it was morphea. Does this sound accurate? It looks like orange colored dots surrounding my nipple and going around to my back. I don't feel an indent or anything. It's just like a discoloration of skin. I've had it for as long as I can remember, so I don't remember if it felt hard when I first got it because it has been so long. No tinea versciolor treatment(ointment or medication) or home remedy has ever worked on this. It has burned my skin extremely badly. But she is a CHILDREN's dermatologist, said that it was morphea and linear scleroderma, the explanation kind of sounded all over the place. She said it is indented but I didn't notice an indent. Also we had trouble finding pictures that looked similar to mine. Should I get a 2nd opinion? 3)I am planning to hopefully get laser done on this when I'm older. I am not a usually insecure person, but it has stopped me from going swimming. I tell people that it's a birth mark so they will understand, but I'm always worried people will think its catchy. Even I thought it was for years when I had no idea what it really was. Is there any waterproof makeup that you guys could suggest for this?
  3. Hi everyone, I've had linear scleroderma on my left leg from the age of 8 (I'm now 23) I was always told I will never have the systemic version of scleroderma, but over the last month I've had stomach problems. My doctor has now decided to send me for a Scope exam to find out what's wrong. I'm just wondering if anyone has experienced stomach/digestive problems as a result of being diagnosed with linear scleroderma? Look forward to hearing some answers, Louise
  4. Hello All From spending time on the forums I've noticed that most people post about systemic forms of scleroderma as opposed to localised forms of scleroderma. As I have both localised and systemic scleroderma I thought I'd give a shout out for the localised forms, in particular morphea, as that's the one I have. I have uploaded onto the Sclero Forums Photo Gallery various photos of my morphea patches some of which are rather large. I think in total I have over 20 patches on my legs and there seems to be a new one everyday. The ones on my thighs are the largest and they itch unless I keep them moisturised. Unfortunately the patches have disfigured my legs, when I'm outside my legs are covered and will always be, even when morphea stops progressing the patches remain as the damage is done. Have a read of our morphea pages to find out more about this form of scleroderma. Let's not forget bullous morphea, a rare, blistering form of morphea, the link takes you to a picture of my calf two (?) years ago and here is a photo of the same calf now where the bullous morphea has burst and ulcerated. Look at what linear scleroderma can do, it's a line of thickened skin but it can affect the bones and muscles underneath it limiting the motion of the affected joints and muscles. What I find amazing about scleroderma, amazing as in can there be such a relentless, unforgiving disease, is that even the localised forms, that don't affect the internal organs or reduce life expectancy, can disfigure, disable and devastate. Have a look at our series of Scleroderma Videos , especially the videos about localised scleroderma, morphea and linear. Whatever form of scleroderma you have I hope you'll find these forums are the place for you and take care.
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