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Found 2 results

  1. The results of my lung CT scan came in and the fibrosis in my lungs has increased. Along with ground glass I now have an area of honeycombing, a more advanced form of fibrosis. I started oxygen therapy a few weeks ago due to desaturating on a six minute walk test and a decline in lung function on my pulmonary function tests. I consulted with the pulmonary doctor at the scleroderma center and he is submitting my records for lung transplantation to two centers in my area. I do not need a lung transplant at this time, I may never need one, this is just to find out if I would even qualify. I have
  2. Hi, I am new in this forum and I am looking for some information. My Dad has scleroderma, he is 58 years old and was diagnosed about 13 years ago. His breathing has been getting steadily worse now for the past 2 years and he is now on oxygen full time. He has Pulmonary Fibrosis and also Pulmonary Hypertension although the PH is undercontrol with medication. We have just been informed that he will not be assessed for a lung transplant despite his consultant asking for an assessment, we don't yet fully understand the reason for this and are waiting for more information. What I really
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