Search the Community
Showing results for tags 'Lung Transplant'.
Found 2 results
The results of my lung CT scan came in and the fibrosis in my lungs has increased. Along with ground glass I now have an area of honeycombing, a more advanced form of fibrosis. I started oxygen therapy a few weeks ago due to desaturating on a six minute walk test and a decline in lung function on my pulmonary function tests. I consulted with the pulmonary doctor at the scleroderma center and he is submitting my records for lung transplantation to two centers in my area. I do not need a lung transplant at this time, I may never need one, this is just to find out if I would even qualify. I have a lot going against me: age, scleroderma, and the kidney transplant. I've known for a long time that the only thing that could be done for my lungs is a transplant so this is just at the investigative stage. I had a right heart catherization to test for pulmonary hypertension last week at the scleroderma hospital. This one was different from two previous ones as part of it was done during exercise. I had to lift saline bags until the point of exhaustion. I've had two previous heart caths but not under exercise so this was a new medical adventure! After the procedure the cardiologist told me I have "slight pulmonary hypertension but he has seen worse." He was forwarding the results to the pulmonologist and scleroderma specialist and told me they would prescribe the treatment. My scleroderma specialist called today with the results of the heart cath and I have fluid in my lungs. A diuretic will have to be found that is compatible with my anti-rejection meds and my nephrologist will need to decide which one. Once the fluid problem is solved I may need to go on something like Viagra, if it is compatible, for the pulmonary hypertension. I am waiting for the pulmonologist to weigh in on this. There have been very long days with doctors and the heart catherization reactivated my hospital related PTSD. There will be more doctor appointments coming up and more medications in the mix. I have a lot of questions that need to be answered, and will need to coordinate a lot of this. Longing for medically free days, miocean
Hi, I am new in this forum and I am looking for some information. My Dad has scleroderma, he is 58 years old and was diagnosed about 13 years ago. His breathing has been getting steadily worse now for the past 2 years and he is now on oxygen full time. He has Pulmonary Fibrosis and also Pulmonary Hypertension although the PH is undercontrol with medication. We have just been informed that he will not be assessed for a lung transplant despite his consultant asking for an assessment, we don't yet fully understand the reason for this and are waiting for more information. What I really wanted to know is if anybody knows of scleroderma patients in the UK who have received lung transplants and how many of these have been done in the UK ? Any information on Lung Transplant for Scleroderma patients in the UK would be great. Thanks