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Found 4 results

  1. Hi, I am new here and I am from Greece. My English is not very good. My story with all that stuff began in 2006, with a Raynaud's attack. I was on vacation in a beach and I was swimming. This has repeated many times since then. I searched in Google and found about autoimmune diseases. I went to a rheumatologist, who ran blood tests with confused results. I have visited 4 rheumatologists until now. I have telangiectasia for 30 years. I am 51 now. I have some problems with my heart. Two days ago, I visited my cardiologist and he found 40mmHg pulmonary pressure. My world collapsed. I am
  2. Hello all, we got the call today that we have been dreading. Our 13 yr old daughter was referred to a pediatric rheumatologist by her primary doctor. I took her in because she’s been experiencing terrible shoulder and knee pain all summer. I have RA so I was afraid she might have the pediatric form of it starting. She was negative for rheumatoid factor but positive for ANA and ACA. The rheumatologist confirmed the findings and said she has CREST. Of course I’m devastated and perhaps I’m grasping at straws but she has no CREST symptoms at all. Her only symptoms to this d
  3. Hello everyone, I made a post a few days ago about my little sister getting Raynaud's and ANA positive 1:2560 (are there healthy peoples with that high of a titer?) with no other symptoms and Raynaud's Phenomenon running in our family. My doctor talked about scleroderma but was not that worried and no appointment to any rheumatologist was planned, which is bothering me. I tried to do what very lovely peoples told me here, to keep calm and all, so thanks for your help. I was just wondering if little injuries on toes usually appear with Raynaud's Phenomenon?
  4. Hi Friends, It all started with my finger getting blue didn't take this seriously as I kept my self warm it was all good. I come from a warmer climate and as I got married I came down to Los Angeles. My blue fingers started getting blue even more day by day. My parents where more worried and asked me to show doctor as its not normal to have blue fingers. I googled and it said keep yourself warm and this happens to lot of women, known as "Raynauds phenomenon". I was not that serious for 5 years and then once it happened that I had to visit my parents and they forced me to see a
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