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Found 14 results

  1. Clinical presentation and diagnosis of multiple sclerosis. New diagnostic criteria have been developed to allow an earlier diagnosis and thus access to effective disease modifying treatments. PubMed, Clin Med (Lond), 2020 Jul;20(4):380-383. (Also see Multiple Sclerosis) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  2. Plasma α-L-fucosidase-1 in patients with Sjögren's syndrome (SS) and other rheumatic disorders. This preliminary result should encourage further research on α-L-FUCA-1 as a possible differential serological marker of SS. PubMed, Int J rheumatologist Dis, 08/16/2019. (Also see Diagnosis of Sjögren's Syndrome) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  3. Diagnosis and management of linear scleroderma in children. Clinical evaluation, both physical exam and history, is the most important aspect in diagnosing and assessing activity of linear scleroderma. PubMed, Curr Opin Pediatr, 05/30/2019. (Also see Juvenile Scleroderma Research and Linear Scleroderma) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  4. I've looked up the different things that I've went to doctors for, like the red dots on my face, chest, and upper arms. My eyelids are thickening and changing colors. I have a big brown patch on my face, I have crusty skin on my hands and arms. I have IBS and a peptic ulcer, I've had pulmonary embolisms, and I get pleurisy. I have more, but I live in Southwest Missouri and there's not much advancement here. What kind of doctor would be best to talk to?
  5. Hello, my mother passed away from systemic scleroderma. I wanted to ask what kind of tests I need to do for myself and what kind of doctor should I visit, is it a dermatologist? Thanks everyone in advance.
  6. Hi all, I'm new to this forum. I'm a 25 year old male currently in a graduate program in NY. For the past several years I've had cold sweaty/clammy extremities (e.g., feet, hands, nose, knees), with blotchy discoloration. This is rather persistent, and I never really questioned it. A few winters ago, I noticed my hands looked red and irritated (with raised bumps, mildly itchy). I was initially told I had a skin reaction, but after the same thing happened the following winter, my primary care physician assumed it was Raynaud's Phenomenon (RP) . About a month
  7. The Doctor–Delayed Diagnosis. While awaiting a correct diagnosis, patients frequently experience worsening symptoms, a decline in overall health and even death. IG Living, 11/02/2017. (Also see Difficult Diagnosis) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  8. Hi all, I went to see a new Rheumatologist today and still do not have a definitive answer. Here is what I know. I have a positive ANA with a 1:2560 titer with centromere pattern, reflux disease, Raynaud's disease, mitral valve prolapse, low vit D and low blood pressure, dry eyes, some questionable red spots on my face mostly on or around my lips and some scattered brown spots on my face. I live in the midwest. All my symptoms have developed over the last 5 years or so except the Raynaud's which has been a bit longer. Two Doctors, two opinions. One says limited scleroderma, the oth
  9. Diagnosis of Scleroderma. Diagnosis of scleroderma is usually achieved through your medical history and a thorough physical exam. Blood tests are performed to look for specific antibodies. Posted 04/22/2015. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  10. For the last few years, I've experienced periods where I just don't feel well and have a low-grade fever, and experience extreme exhaustion. These usually last 2-4 weeks at a time. I never paid much attention to them. This past August, my TMJ flared up badly resulting in my jaw moving out of place. My dentist prescribed a max dosage of ibuprofen for as long as necessary, and even though I disagreed, I didn't know what else to do. Fast forward a few weeks to ankles swelling, canker sores, and another episode of feeling off with a fever. The ibuprofen never touched the fever, either. When I deve
  11. This is my first post on this forum. I have not been given an official diagnosis yet that I have this illness so I am trying to stay positive and I have seen some very positive stories of people getting with life as close to normal as possible. I have had Raynaud's for a number of years now but recently it has become more severe and has spread to other parts of my body, feet, nose and lips in particular. Even if I am not having a full blown attack, my finger tips remain bluish and cold and I have had my first 'hack' on one of my finger tips due to skin drying out and becoming quite thin
  12. Hi, I'm new to the forum. I'm finding comfort in reading your stories, but still have confusion with my lack of diagnosis. I originally went in with complaints of swollen hands and feet, numbness in arms, hands, feet, and pain. I couldn't sleep at night and woke up 6-20 times to walk it off. For the last few weeks I started having significant muscle pain all over and what feels like friction rub in my tendons around my knees. It's very difficult to stand up, climb stairs, or move muscles after rest. On blood work they found high ANA and scl 70 (elevated LFTs and other issues).
  13. I have tried various doctors over the years with no diagnosis. One of the positive tests I had in the past was for scleroderma but then it wasn't positive the next test so my primary care physician said it was probably a fluke. This past weekend I had what I will call a flare up. These flare ups are increasing in number and this recent one scared me so I thought I would post here to see if someone may be able to point me in the right direction. I'm 38 and in good shape physically. I tanned on Wednesday and Friday (needed for work...not something I do for personal asthetics) of this past week
  14. Hello everyone here, I wonder if you might be able to help. My doctor sent me results with no interpretation. I have been having various symptoms over the last two years since having my baby. I twitch all over, and have transient pain in my muscles and joints. My doctor ran a bunch of immune tests and found a positive SCL-70 of 6.7 and a negative ANA. I am wondering if this has to be watched. Am I likely to get scleroderma in the future? I would appreciate any input. I am terribly worried.
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