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Showing results for tags 'difficult diagnosis'.
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Joelf posted a topic in News7 Things People With Invisible Illnesses Think You Should Know. People with invisible illnesses often need just as much practical and emotional support as those with illnesses you can see. Scleroderma News, 01/16/2017. (Also see Difficult Diagnosis) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
Keelton posted a topic in Sclero Forums (MAIN)I was diagnosed with esophageal dysmotility and I also have a positive RNA polymerase llll antibody. So far I have no diagnosis . No other symptoms. I have a hard time believing that this is just a coincidence! I feel like a ticking time bomb just waiting everyday for it to hit me. I have seen a specialist in NY and he says he cannot diagnose me based on the criteria. He explained that they don't test the general public for these antibodies so they don't know how many healthy people could have them and don't know. Anyone else have this situation and never go on to develop anymore symptoms? I am so stressed out because of this. Had to start seeing a psychologist and taking medication. Cannot think about anything else. Want to have another baby but feel like I have to put my life on hold. Not knowing is hard.
mystique123 posted a topic in Sclero Forums (MAIN)Hi all, Two years ago I had my first Raynaud's attack, I must say it's been pretty mild so far. Soon after that I was diagnosed with Hashimoto's disease, and lately I have been having numb hands and feet at nights with severe night sweats so I went to see the doctor. My rheumatologist did several tests and the results for kidneys liver etc is fine, also no inflammation. However my previously negative ANA became positive. After this I had a nailfold capillaroscopy which was good, not abnormal result. Since I have been having a lot of symptoms I was wondering if anybody with primary Raynauds has a positive ANA, can this be possible? Or can Hashimoto's cause this? How reliable is capillaroscopy, have you guys had it? Doctor said I have to visit him every 6 months to see if sclero symptoms appear. Thanks!!
Hi, I am new to this forum and glad that I have come across it! I have been suffering from Raynaud's for approximately 10 years although I have only had it diagnosed this week. It was only through a friend that when discussing the effect of the cold on my hands, feet and nose, that my friend mentioned a relative of hers had Raynaud's. I immediately started researching on the net and concluded that's what I had. During my search I saw a link to GERD and this then linked to Scleroderma . I have had severe GERD for the past 6 years which started during my pregnancy. The more and more I read on I discovered that symptoms that I have are extremely similar to scleroderma sine scleroderma as I have no skin disorder. Other than Raynauds and GERD my symptoms are dry coughing, shortness of breath on exertion, heart palpitations, carpal tunnel syndrome and fatigue. I also suffer with frequent bowel 'rumblings' every time I eat which often leads to having to run to the bathroom within half an hour. I had some tests done last week and I received the results today. I was positive in ANA (speckled patter titre 640) and also in ENA SSA (RO60). I was negative in ENA Scl-70 which my doctor told me is prominent in scleroderma. She told me that my results were more common in lupus and is now doing further tests (ds DNA,cardiolipin etc.) My issue is that my symptoms appear to be so close to scleroderma and not very close to Lupus. Don't get me wrong, I don't really want to have either, however, I am worried that the sclerodera is going to be overlooked. I also understand that the GERD could be completely separate issue and not related to scleroderma, however, I can't seen this symptom for Lupus. I wanted to reach out and ask whether anyone has had similar test results to mine but has been diagnosed with scleroderma. I will have my second set of results tomorrow and have to see a rheumatologist. Has anyone had a similar experience? All feedback would be welcomed. Many thanks