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This is the title of a new educational article on my Scleroderma Education Project website (SclerodermaInfo.org). Yes, You DO Have Internal Organ Involvement, But… Note: if you sign up on the Scleroderma Education Project home page, you will automatically be notified whenever any new posts are added to the website.
Hi. Autoimmune diseases run in my family. So after being diagnosed with Raynauds,fibromyalgia, chronic fatigue syndrome, IBS, arthritis, peripheral polyneuropathy, and a host of other disorders, it was not a surprise that my bloodwork came back positive for scleroderma antibodies and inflammation. My oral surgeon, who I am seeing for possible oral lichen planus, also viewed the initial results and asked if I knew I have scleroderma, By the way, I have also started bruising quite easily and am very slow to heal. My general practitioner sent me to a rheumatologist who repeated the bloodwork but also ordered other blood tests I do not understand. I viewed the results. The scleroderma and inflammation results are almost identical to the first time. However, I received a call from the rheumatologist's office saying that the results are negative for scleroderma but show inflammation due to neuropathy. When I asked why these results rate as a negative but the same results from my general practitioner were listed as positive, I was told that false positives are possible and that I would be sent for x-rays. Has anyone else experienced anything like this? Would you please share any insights, if so. Thank you