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Found 3 results

  1. Hello, I really hope that you guys can help me a bit with following problem: One year ago I went to my rheumatologist because I had stiffness in my fingers and pain (in the morning and also in the night). It always gets worse in summer when It gets warmer (it is somehow also linked to sweating). There were days when I could barely write because my hands felt puffy, started to sweat a lot and were extremely stiff. My doctor found out that I have scl 70 antibodies, my ANAs have been always negative (I do regular check ups), no rheumatoid factor, all other Blood values are good. My doctor said that he doesn’t believe I have scleroderma but I am not imagining to have pain and the stiffness; when I am stressed or did a lot of physical activity the pain and stiffness spreads to my feet. I have the symptoms of my hands for 4 years now and nobody seems to understand it or is willing to help. I am a medical student so I did a bit of research and found out that scl 70 is mostly specific for the diffuser type, I went to a lot of doctors and got my organs checked, everything is fine until now, I don’t have lung involvement, my heart is fine (apart from a mild congenital regurgitation) and I do not have Raynaud's syndrome (I did a capillary bed examination). My rheumatologist said that I should not worry and he doesn’t want me to come again because, as I said, he doesn’t believe I have scleroderma. I am really worried and afraid. Even though I am mostly fine and "just“ have the symptoms of my hands, I worry that soon it might get worse and affect my organs.. well, sooner or later it will because I have the antibodies. My question is if I should do regular check ups of my organs (each year) and if some of you have had similar symptoms at the beginning and how long it took in your case until the disease spread? Oh and I have hashimotos disease, I don’t know if that’s relevant. Thanks in advance
  2. Hashimoto's thyroiditis (HT): Relative recurrence risk ratio and implications for screening of first degree relatives. Relatives of HT patients have a 9 fold increased risk for developing HT as compared to the general population and the risk of developing HT exceeds that of the general population at 20 years in females and 27 years in males. PubMed, Clin Endocrinol (Oxf), 03/08/2017. (Also see Hashimoto's Thyroiditis) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  3. Hi all, Two years ago I had my first Raynaud's attack, I must say it's been pretty mild so far. Soon after that I was diagnosed with Hashimoto's disease, and lately I have been having numb hands and feet at nights with severe night sweats so I went to see the doctor. My rheumatologist did several tests and the results for kidneys liver etc is fine, also no inflammation. However my previously negative ANA became positive. After this I had a nailfold capillaroscopy which was good, not abnormal result. Since I have been having a lot of symptoms I was wondering if anybody with primary Raynauds has a positive ANA, can this be possible? Or can Hashimoto's cause this? How reliable is capillaroscopy, have you guys had it? Doctor said I have to visit him every 6 months to see if sclero symptoms appear. Thanks!!
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