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Hi, I have recently been diagnosed with Scleroderma by a scleroderma specialist. She is re-running all the blood work (initially run by local rheumatologist) to confirm whether it's limited or diffuse. Looking back now, it seems I've had symptoms over the last 2 years but only recently started progressing. I developed Raynauds in October and immediately started getting sores on my fingers that wouldn't heal, which finally sent me to my primary care physician. I want to ask about other symptoms I've been having to find out if this is something any of you may be experiencing. I have intense itching, day and night (keeps me awake at night) that is driving me crazy. Sometimes it itches so bad I want to scratch my skin off! I have also had skin darkening around my abdomen and my upper back and swollen lymph nodes in my neck. To say the least, I am very frightened of the unknown and what to expect will happen to me. I am scheduled for a pulmonary function test and echo. So far the GFR bloodtest for kidney function came back very low, is this common? Does this mean it is diffuse scleroderma? Still waiting on the rest of the tests. Any advice or support you could give would be very much appreciated! Thanks, Jean
Hi! My name is Kristyn and I have recently been diagnosed with Morphea. Initially, the giant bruise like marks on my side were diagnosed as hyperpigmentation. It wasn't until recently, when another bruise like mark developed and stayed, that I went to another dermatologist and consequently received the diagnosis. My dermatologist is good, but he is busier than any doctor I have ever seen - I felt like my questions and possible pertaining symptoms were pushed aside because there was almost nowhere to sit outside in the waiting room that day. I was wondering if somebody more experienced can answer my questions I have about Morphea and my strange symptoms that I believe may be related. For three years I have itched at night, randomly. No rash, no bumps, no visible evidence of itching, but it would truly keep me up all night. It happened after I got super sick with bronchitis and never went away. My general practitioner performed so many tests (CT scans, blood work, etc.) and found nothing. They chalked it up as stress... But the only thing that was stressing me out is that I couldn't sleep because of the itching! Ever since then I have learned to live with it, even though it still happens occasionally. My Morphea is present on my upper left rib cage. I have a "burnt out" lesion (?) and an active one - both are very large. Sometimes I get pain right in the active spot. It is especially noticeable on some days (like right now). It aches, and I notice that that area of my ribcage is thicker/more swollen than the other side... Not by a insanely noticeable amount, but it's evident. Additionally, last year I started having pain in my left leg (the side where my Morphea is present). My general practitioner said it was sciatic nerve pain and ordered a plethora of tests - all coming up to show nothing, again. I'm almost embarrassed at this point to go back to my general practitioner because I am afraid that I look like I am making stuff up, haha. I wish I was! Has anyone else experienced these symptoms? Given your knowledge of this condition, do you think they could be related to Morphea? My dermatologist somewhat dismissed my questions and said it just effects the skin, that's all. I remarked about pain and he said "no, there is no pain with this" before sending me off with a prescription for steroid cream. I can't help but feel like he might be wrong, though. I am in my early 20s and I am college student. I am in some sort of discomfort almost everyday and it is kind of depressing me - I feel like I am in my late 70s some days! This should be the prime of my life and I am trying to get answers so I can get back to normal. Sorry for the novel! Thank you for any help in advance! I truly appreciate it.
Hello Does anyone know the incidence of Scleroderma in men over 70? I have just got a cluster of very recent symptoms ( blue hands, intestinal problems: flatulence, constipation, and skin itching , a small amount of local skin thickening just below the elbow) . My doctor is taking blood tests . I'm worried.
I hope this finds everyone warm and happy. :) I've had a pretty good winter. I have had terrible terrible itching the past couple of months. It seems to be on my back, hips, the scar from my C Sections and legs. It is driving me nuts. I thought maybe I was over washing so I have been only showering every other day and drowning myself in cream. Does anyone have any thoughts or advice on relief of this? And is this something that will come and go over my lifetime? I am 5 years into my diagnosis. thanks everyone. Marsha