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Showing results for tags 'lupus or scleroderma'.
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Hi, I am new to this forum and glad that I have come across it! I have been suffering from Raynaud's for approximately 10 years although I have only had it diagnosed this week. It was only through a friend that when discussing the effect of the cold on my hands, feet and nose, that my friend mentioned a relative of hers had Raynaud's. I immediately started researching on the net and concluded that's what I had. During my search I saw a link to GERD and this then linked to Scleroderma . I have had severe GERD for the past 6 years which started during my pregnancy. The more and more I read on I discovered that symptoms that I have are extremely similar to scleroderma sine scleroderma as I have no skin disorder. Other than Raynauds and GERD my symptoms are dry coughing, shortness of breath on exertion, heart palpitations, carpal tunnel syndrome and fatigue. I also suffer with frequent bowel 'rumblings' every time I eat which often leads to having to run to the bathroom within half an hour. I had some tests done last week and I received the results today. I was positive in ANA (speckled patter titre 640) and also in ENA SSA (RO60). I was negative in ENA Scl-70 which my doctor told me is prominent in scleroderma. She told me that my results were more common in lupus and is now doing further tests (ds DNA,cardiolipin etc.) My issue is that my symptoms appear to be so close to scleroderma and not very close to Lupus. Don't get me wrong, I don't really want to have either, however, I am worried that the sclerodera is going to be overlooked. I also understand that the GERD could be completely separate issue and not related to scleroderma, however, I can't seen this symptom for Lupus. I wanted to reach out and ask whether anyone has had similar test results to mine but has been diagnosed with scleroderma. I will have my second set of results tomorrow and have to see a rheumatologist. Has anyone had a similar experience? All feedback would be welcomed. Many thanks