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  1. Hello, I’m Aimee, I am 20 years old and have had morphea since I was 6. I have a patch extending from under my armpit to below my breast, as well as another separate patch in the middle of my left abdomen. While it doesn’t bother me in any way, I have had my muscle eaten away under my morphea and this affects me a lot. Because it is across the left side of my trunk, any form of muscle building exercises will instantly give me problems since my right side tends to bulk more in order to compensate for my left weakness. If I work out my arms my shoulders get tense, my legs then my hips
  2. Long-standing morphea and the risk of squamous cell carcinoma of the skin (cSCC). Fibrosis, inflammation and chronic ulcerations may eventually promote skin neoplasms; morphea is therefore a rare but established risk factor for cSCC. PubMed, J Dtsch Dermatol Ges, 05/04/2020. (Also see Causes of Morphea) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  3. Ultraviolet A1 phototherapy for the treatment of localized scleroderma. UVA1 successfully ameliorated sclerotic lesions, including morphea, linear scleroderma and morphea lesions in a patient with limited cutaneous systemic sclerosis. PubMed, J Dermatol, 05/08/2020. (Also see Morphea Treatments) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  4. Changes in Disease Activity and Damage Over Time in Patients With Morphea. Standard-of-care therapy appears to improve disease activity, which allows sclerosis to improve, and provides relative stability of other features of disease damage. PubMed, JAMA Dermatol, 04/01/2020. (Also see Morphea Treatments) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  5. Hi everyone, I am new to this forum and I'm so thankful that I found this website. I was diagnosed with morphea 10 years ago. I have seen 5 doctors (Dermatologist) and none of them were able to help me. I know that there is no cure for my condition but I am hopeful that the progression will somehow stop. I have a patch on my left cheek which started 10 years ago and now it is getting worse. A year ago, I noticed another patch on my neck. Does anyone know a good doctor in Sydney who specialise in Morphea? I tried searching on the internet and most doctors are only specialised in Sk
  6. Comorbidity of localized scleroderma and primary biliary cholangitis (PBC). The coexistence of morphea, anti–mitochondrial antibodies positivity and PBC is a rare but possible association. PubMed, J Dtsch Dermatol Ges, 2018 Nov;16(11):1323-1327. (Also see Conditions Associated with Morphea and Liver Involvement) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  7. Assessing the response of morphea and limited scleroderma to tranilast: a small prospective study comparing topical corticosteroids to a combination of topical corticosteroids and tranilast. This was a small single center study and the role of tranilast in the management in scleroderma warrants further investigation in larger trials. Dove Press, 07/04/2018. (Also see Clinical Trials and Morphea Treatments) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  8. Started on Plaquenil at 200mg a day for 2 weeks, and have been on 400 mg a day for a little over a week - which is my maintenance dose. I have been feeling extremely fatigued, but now also am having terrible mood changes and feel terribly depressed at times. I am concerned that if I stop taking the Plaquenil, I will start having more episodes of acute arthritic arthritis - which are terribly painful and usually put me in hospital. I have not been offered any alternatives. I have had scleroderma for approx 20 years without being given any DMARD's.
  9. Hi all, I was just diagnosed by the Mayo Clinic with an extremely rare disease called Pansclerotic Morphea. I just confirmed how rare it is by searching this blog and only came up with one thread. If it was anywhere you would think it would be here. Anyway, the recommended treatment right now is with Prednisone, CellCept, and UVA1 photo therapy. I'm in the process of acquiring a home light unit, but in the meantime I'm considering treatment at a University hospital down in Dallas (UTSouthwestern). Does anyone know of any UVA1 treatment facilities closer to Tulsa, OK
  10. Good morning, I was diagnosed at the age of 9 with Scleroderma/morphea with patches on both sides of my neck and below the neck on my collar bone. The spot on my collar bone was very thick and had a scar tissue appearance. A biopsy confirmed the diagnosis and I was treated with cortisone tape and Vitamin E for maybe 7 years. After a few years of using the cortisone tape, the front spot thinned out completely and remained a discolored mark on the skin. I am now 55 years old. For the past few years I had a small lump where the biopsy was done and it hurt when I touched it. My dermato
  11. Hi! I’m Amber 33 and new to the forum. My symptoms started with numbness and tingling in my hands and arms along with extreme stiffness and weakness in my hands. My doctors thought it was carpal tunnel but it didn’t make sense seeing how I had been a stay at home mom for ten years prior. Afterwards, my hands began to swell, my hip started becoming sore, I had this strange bruise type rash that wouldn’t go away down my leg, and my shoulders began keeping me up at night. My mother passed with leukemia around this time and things got even worse. My neck would pain me constantly and fe
  12. Skin mapping for the classification of generalized morphea. Symmetric and isomorphic subsets possess distinctive demographic and clinical features, suggesting they more accurately define the phenotype of generalized morphea. PubMed, J Am Acad Dermatol, 2018 Feb;78(2):351-357. (Also see Morphea) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  13. Hi everyone, I'm new here and after beginning the process of diagnosis am hopeful for some advice. I visited my dermatologist after noticing a reddish lesion on the small of my back. As best I can tell it had been there for about 4-5 months tripling in size from a start about the size of a quarter. The dermatologist saw it and immediately said, that's a morphea -- which at the time meant nothing to me. He did a two-punch biopsy and the results have come back as "features consistent with morphea". At the time of the biopsy, I didn't know what morphea was, so I didn't as
  14. Hello, I was diagnosed with localized morphea in 2014. I was initially diagnosed by a dermatologist, and given a topical steroid cream. She did not seem the least bit concerned, not taking any photos or scheduling follow up appointments. Knowing nothing about the disease, I simply mirrored the same low-level of concern. Two years passed and my condition worsened. Lesions spread all down my thigh, my calve, and wrapping around to the backside of my leg. Growing concerned, I decided to see a dermatology specialist in Philadelphia. I told her about the progression, showing pict
  15. Hi everyone! I recently discovered this forum and have spent some time looking through all of the posts. Really great to see the support amongst everyone. With that being said, I have a few concerns about my condition and was hoping some one might be able to share some insights. I have a severely dark indented scar on the left side of my forehead (it has developed over a few years). I saw a dermatologist last year who diagnosed it as Linear Morphea and prescribed me ProTopic (Tacrolimus 0.1%) and have been using daily for about 6 months. I was wondering if anyone has had this sam
  16. Hi I'm 17 and I was recently diagnosed with morphea. So far I obviously have a mark on skin and I'm also experiencing fatigue, joint pain and eye strain. I'm just wondering what tips anyone has on working through it and what I have to expect. Thanks !
  17. Hi! My name is Kristyn and I have recently been diagnosed with Morphea. Initially, the giant bruise like marks on my side were diagnosed as hyperpigmentation. It wasn't until recently, when another bruise like mark developed and stayed, that I went to another dermatologist and consequently received the diagnosis. My dermatologist is good, but he is busier than any doctor I have ever seen - I felt like my questions and possible pertaining symptoms were pushed aside because there was almost nowhere to sit outside in the waiting room that day. I was wondering if somebody more experienced can answ
  18. Hi guys and girls! I'm a young man who has had Morphea since I was about 9 or 10. Compared to some people I have it pretty mild, a few patches on the right side of my stomach just under my chest and two small patches below my right arm. But...I'll be honest, I absolutely hate it! It's totally ruined my self esteem and I have no confidence whatsoever. It sounds shallow but I think I'm an alright looking guy with a lot of potential but Morphea just totally ruins me. When I look in the mirror I feel depressed and all I see are the ugly marks. I'd love to be able to go swimming like I used
  19. ray

    New Member

    Hello All I was diagnosed with Morphea in about 2013. Spent many years going back to the doctors saying something was wrong and eventually got diagnosed after having a mole removed from a dermatologist. Have patches on my back, front, legs and now sides of face but they don't really bother me, I get periods of cramp in my legs and lately aches in my arms and elbows. Have seen a specialist at Southend Hospital who is really caring and I have been referred to The Royal Free in London which I am dreading, hate travelling to London but hey ho.
  20. Hi There, I haven't been on these boards for several years. I struggled with morphea that was spreading somewhat aggressively from April 2007 to February 2008. After various ointments, light therapy, steroid injections and finally methotrexate, it burned out and aside from my scars, wasn't really something that I would think about daily anymore. The morphea started on my chest as a bump under the skin, which grew to the size of a plum. The area looked faintly bruised as well. Although it remained on the left side of my body, it eventually spread to my upper arm, wrist, palm and ring finge
  21. Hi, I was diagnosed with localised scleroderma back in 2010. I started with one large patch at the very top on the back of my leg. 5 years on I now have 2 larger plaques and 4 smaller plaques. Based in the UK, I was referred to a specialist a few years ago and since then I've tried the steroid creams, PUVA light treatment and now I am on methotrexate. At 22 years of age, I don't really want to be taking methotrexate but I felt I had no other options. I want to know if anybody else has found methotrexate works for them? I am on 10mg (4 x 2.5 tabs each week) and take folic acid every ot
  22. Hello everyone. I am 27. I was diagnosed with localized scleroderma, or morphea, about 5 years ago. I had a big spot on my anterior abdomen and a very large area encircling most of my right breast, and a couple of tiny ones. I was diagnosed via biopsy after 3 different fungus creams--that obviously didn't work--and all four doctors at the clinic scratching their heads. The spot on my breast actually dug into my skin so badly that it deformed my breast severely. So, over the past couple of years, the spots got better. The one on my abdomen has gotten really thin (without using the stero
  23. Hi folks! I've had morphea since I was born 28 years ago, and I'm just finally ready to dig in to what that really means. I was born with 1 morphea patch, and over the years continued to get more and more on my stomach, hips, back, and sides. No doctors ever said they knew what it was, or cared to look in to it. Finally at 24 I went to a dermatologist to see what the deal was; she suspected morphea, did a biopsy, and called me to confirm her suspicions. (Never did a blood test - thoughts on whether that matters?) All she said was to put a topical cream on them if I got new ones, and th
  24. Hello, I have been diagnosed this year with Morphea. My dermatologist was very concerned that it was Paraneoplastic (meaning related to some type of cancer) since my age is 58 and supposedly it is unusual for someone my age to come up with Morphea unless there is an underlying cause. I have had all sorts of studies and bloodwork for cancer. Everything has come up negative so far (THANK GOODNESS!) I had a lapband placed in February of 2008. The lapband is covered over with lumpy tissue, it pains me with sharp stabbing pains at times, and very near to the port is where the morphea start
  25. Hi all. Haven't posted on here in a long time, hope you are all keeping well. As mentioned in my previous posts I have morphea and the last time I saw a dermatologist about it (maybe a year or so ago), I was told it was in the "burnout" stage. It hasn't really progressed since. Maybe it has just a little or maybe my mind is playing tricks on me because I'm so critical over it. It still doesn't give me pain or complications and I know, especially after reading some of the stories on here, that's ultimately the most important thing. So as of this moment in time it's still purely a cosmetic i
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