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Hello! I'm new to this forum and am hoping someone can help me. My rheumatologist thinks I possibly have Scleroderma. I was referred to the University of Minnesota (U of MN) and I am waiting to be seen. I have had fibromyalgia and chronic fatigue syndrome for about 13 years, among a long list of other health problems. In the last 1 1/2 years my symptoms have gotten worse: sudden weight loss of 15 pounds (which is better now after IV iron), sudden anemia, much worse bilateral joint pain that effects knees, hips, hands/fingers, toes, etc. My Raynauds has gotten worse, worsening fatigue, intermittent swelling in lower legs & hands, small bumps on arms that resemble chicken skin & stomach problems are worsening, among other things. My rheumatologist ran several tests and my anti-RNA Polymerase III keeps coming back strong positive, but nothing else. My rheumatologist is stumped and doesn't want to conclusively say Scleroderma and is sending me to the U of MN Scleroderma Clinic. Has anyone else had similar symptoms of onset? I am worried and I really don't feel well. I feel something has changed in my body and it's not just Fibromyalgia or Chronic Fatigue Immune Dysfunction. There is a lot more to my story and I have other symptoms, but thought I'd start with this. Thank you in advance for your help!
Hi, I have recently been diagnosed with Scleroderma by a scleroderma specialist. She is re-running all the blood work (initially run by local rheumatologist) to confirm whether it's limited or diffuse. Looking back now, it seems I've had symptoms over the last 2 years but only recently started progressing. I developed Raynauds in October and immediately started getting sores on my fingers that wouldn't heal, which finally sent me to my primary care physician. I want to ask about other symptoms I've been having to find out if this is something any of you may be experiencing. I have intense itching, day and night (keeps me awake at night) that is driving me crazy. Sometimes it itches so bad I want to scratch my skin off! I have also had skin darkening around my abdomen and my upper back and swollen lymph nodes in my neck. To say the least, I am very frightened of the unknown and what to expect will happen to me. I am scheduled for a pulmonary function test and echo. So far the GFR bloodtest for kidney function came back very low, is this common? Does this mean it is diffuse scleroderma? Still waiting on the rest of the tests. Any advice or support you could give would be very much appreciated! Thanks, Jean