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Found 3 results

  1. I am new to the forum, and need advice, help, consoling. 10 years ago I was diagnosed with Fibromyalgia and chronic fatigue. Then a heart problem, tachycardia and an intoleration to exercise, I was put on an inhaler. Then I passed out and was diagnosed with MS and put on several medications to control it. Eventually, I started choking on my food, it felt stuck in my chest and I would have to vomit it up. This started happening on a regular basis and I finally went in to have my esophagus stretched. I was told that this is not common with MS. I had some scarring, GERD, and a hiatal hernia. I was put on Prilosec. About 5 months later, they had to do it again. Then I fell down a flight of stairs several times and ripped something in my shoulder and needed surgery. During recovery, I healed so fast that my PT said I have Ellers Danlos Syndrome and needed to get it checked out, except for the fact that my skin is to tight. No elasticity in my skin at all. At the doctor, we discussed the E.D.S and which one I have. In our talk, I mentioned that I was experiencing choking again, sporadically, some swelling in my hands and feet with major pain in both upon waking up, mouth ulcers all over my tongue and in the corners of my mouth making it impossible to open my mouth to eat. My hands are always dry and will get a puckered look on my fingers. He ran a bunch of blood tests. As the results started coming in, they all were good. Then he called, my CRP was elevated, my Sed Rate was up, and my SCL-70 was positive at a 7.6. So now, on top of everything else, I have this to deal with. My appointment with the Rheumatologist isn't until October, so I wait. Worried every time I start hyperventilating when I walk up some stairs, or on a walk with my family. Watching my mouth for more ulcers or when my tongue starts hurting. Stress is high as I also found out my son has a Chiari Malformation that needs surgery, at least I can focus on him for a bit. Thanks!
  2. Hello all, My name is Matt. I was born (as far as I know) with localized scleroderma on my inner right thigh, it wasn't diagnosed until I was around the age of seven after a lifetime (at that point) of doctors visits and poking and prodding. My mother eventually tired of seeing her son treated like a lab rat and decided to stop taking me to the doctor when they just shrugged their shoulders and said I'd be dead or in a wheelchair by the age of 16. Well here I am about to turn the dirty thirty. Still walking and talking and served six years in the military to boot (hid my sclero). I am now currently looking to help in any study or trial that will have me. My scleroderma has spread to my right calf and up my right side and back. I am also looking for anyone who can tell me if I should be concerned about my localized sclero making its way near my spine. Thank you to anyone who took the time to read this! Sincerely, Matthew "Badmass" B.
  3. Hello everyone I hope you are all good. As the topic header suggests I am new here and new to Morphea. My story, I'm 24, from UK and female, I was diagnosed with Morphea two years ago after being scared to go to my general practitioner for almost two years prior to my diagnosis in fear of cancer and my first show was on my chest below my collar bone. I had no idea what was going on in my life at that time and was going through some pretty turbulent stuff so I put the strange 'bit' to the back of my head until one day I figured I had best get it checked. So I did just that; I had the usual wait to see if it fades, blood test, more blood tests, more waiting, biopsy of the area, which now kinda looks like a bullet wound; my friends and I make the joke that it is the only hit Chuck Norris got to me before I beat him in a thumb war haha. After the test results came in I was diagnosed with Morphea; however, my doctor told me nothing about it, just that it was a skin disorder and to put some ointment on it. I was given for 6 months then I'd be fine, it was only last night I actually researched it on my own to find out the skin disorder I have which I thought was more like eczema was in fact not. So I'm sitting here confused and dazed, perplexed and troubled over why I wasn't given all the information and that I'm not 100% sure what type of morphea I have. It's scary. Not only that but I have in the past year found more illness in me and now after many tests regarding my new symptoms I have no idea if it's all connected and there's a bigger scarier picture waiting to unfold around me. I come here today humble and in need of clarity and support and I thank you all for it. Thank you and hello :)
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