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Found 9 results

  1. The International Scleroderma Network thanks Gilead for sponsorship support to tackle scleroderma and pulmonary hypertension from 2011 to present. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  2. The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support, from 2006 to present. (Also see: What is Scleroderma? and What is Pulmonary Arterial Hypertension?) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  3. Hello Scleropeeps, I've been away from the site for awhile, trying to pretend I have a normal (healthy) life I guess. It worked for a little while. I was feeling pretty good physically, was staying busy, felt like I had a purpose and was able to push through the bad days. These days, not so much. I've been battling my depression again. It has slapped me down hard this time - harder than I have ever felt it before. Every day is a struggle to get out of bed. BUT I DID manage to get myself to our local mental health clinic and am seeing a professional. One thing I thought might be good for me was to come back here and reconnect with you all. I think about my Scleropeeps often and how lucky we are to have this forum. I look forward to reading the forums and catching up. Many Spoons to All, Barefut
  4. Selexipag for the treatment of connective tissue disease–associated pulmonary arterial hypertension (PAH). Selexipag delayed progression of PAH and was well–tolerated among PAH–Connective Tissue Disease patients, including those with PAH–Scleroderma and PAH–Systemic Lupus Erythematosus. PubMed, Eur Respir J, 2017 Aug 17;50(2). (Also see Uptravi® (Selexipag) for Pulmonary Hypertension) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  5. Complex pathophysiology of pulmonary hypertension (PAH) associated with systemic sclerosis (SSc): potential unfavorable effects of vasodilators. Pre–assessment of pathophysiology of pulmonary hypertension and cautious monitoring during the treatment are necessary to achieve better outcomes in patients with SSc–PAH. Journal of Scleroderma and Related Disorders, JSRD 2017; 2(2): 92 - 99. (Also see Treatments for Pulmonary Arterial Hypertension: PDE-5 Inhibitors) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  6. Beneficial effects of long–term treatment with bosentan on the development of pulmonary arterial hypertension in patients with systemic sclerosis. Long–term treatment with bosentan reduces the risk of developing PAH in patients with systemic sclerosis. PubMed, J Int Med Res, 2016 Sep;44(1 suppl):85-89. (Also see Tracleer (Bosentan)) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  7. Impact of pulmonary fibrosis (PF) and elevated pulmonary pressures (PHT) on right ventricular (RV) function in patients with systemic sclerosis (SSc). SSc patients show impaired RV function and both pulmonary fibrosis and PHT are independently associated with RV dysfunction. PubMed, Rheumatology (Oxford),2016 Mar;55(3):504-12. (Also see Cardiac (Heart) Involvement and Pulmonary Hypertension) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  8. Sara P: CREST Syndrome (Update) It has been three years since I've posted and I am happy to say I am still doing well..... Posted 04/15/2014. There are over 1,000 Patient and Caregiver Stories on the main Sclero.org site. Over 300 of these stories are featured in the Voices of Scleroderma book series.
  9. Has anyone used Revatio for PAH and if so did you experience side effects? I am having headaches and sleepiness which are counterproductive to say the least. Did the side effects decrease with time? Thanks, Lynne CREST with PAH
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