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Found 3 results

  1. Examination of the association of sex and race/ethnicity with appearance concerns: a Scleroderma (SSc) Patient–centered Intervention Network (SPIN) Cohort study. Appearance concerns were common in SSc and women were substantially more likely than men to have appearance concerns. PubMed, Clin Exp Rheumatol, 08/01/2016. (Also see Quality of Life with Scleroderma) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  2. Exploring Sources of Emotional Distress among People Living with Scleroderma: A Focus Group Study. Interventions and supportive resources need to be developed to help individuals with scleroderma and people close to them manage and cope with the emotional aspects of the disease. PubMed, PLoS One. 2016 Mar 23;11(3):e0152419. (Also see Quality of Life with Scleroderma and Coping with Scleroderma) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  3. A review on quality of life in systemic sclerosis (SSc). It is important for SSc patients to have an interdisciplinary approach towards their cognitive representations of the disease and what they value most. PubMed, Autoimmunity Reviews, 07/29/2015. (Also see Quality of Life with Scleroderma) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
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