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Found 2 results

  1. Hello, I was diagnosed with localized morphea in 2014. I was initially diagnosed by a dermatologist, and given a topical steroid cream. She did not seem the least bit concerned, not taking any photos or scheduling follow up appointments. Knowing nothing about the disease, I simply mirrored the same low-level of concern. Two years passed and my condition worsened. Lesions spread all down my thigh, my calve, and wrapping around to the backside of my leg. Growing concerned, I decided to see a dermatology specialist in Philadelphia. I told her about the progression, showing pictures I documented on my own. I also explained I was having extreme muscle spasms in my leg in which I have the lesions. My doctor said there is no link between the two. She prescribed me plaquenil, to which we learned after 3 months of taking the drug, my body was not responding. At that point we decided to try methotrexate. I had a hard time with the drug, and requested to be taken off of it my next visit. I work in the pharmaceutical industry, so I completely understand the necessity for pharmaceuticals. When I asked to be taken off of the drug, my doctor was flabbergasted. She explained that we finally found something that worked -- why would I want to be taken off and back track? My concern is that we are not getting to the root of the problem. I don't want the lesions to simply stop spreading, I want to understand how it's happening. Furthermore, I am very familiar with methotrexate from working in the pharmaceutical industry, and the aggressive nature of the drug that has potential to cause liver damage. I am 25 and concerned. My leg spasms are at its worst, at some points so aggressive that they are awaking me from deep sleep. I feel alienated by my doctor. I have thrown around the idea of seeing a younger rheumatologist that may be more open to exploring other treatments. Additionally, I am interested in participating in clinical trials. Does anyone know how I would go about that? Thank you for your support and knowledge on this subject. Kara
  2. Hi all, Two years ago I had my first Raynaud's attack, I must say it's been pretty mild so far. Soon after that I was diagnosed with Hashimoto's disease, and lately I have been having numb hands and feet at nights with severe night sweats so I went to see the doctor. My rheumatologist did several tests and the results for kidneys liver etc is fine, also no inflammation. However my previously negative ANA became positive. After this I had a nailfold capillaroscopy which was good, not abnormal result. Since I have been having a lot of symptoms I was wondering if anybody with primary Raynauds has a positive ANA, can this be possible? Or can Hashimoto's cause this? How reliable is capillaroscopy, have you guys had it? Doctor said I have to visit him every 6 months to see if sclero symptoms appear. Thanks!!
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