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Found 4 results

  1. Hello all! I'm new here---just joined today. 5 years ago, due to abnormal liver reads, I had a lot of tests done, one of which was an ANA, which was positive, and a SCL-70 of 4.60. I saw a rheumatologist, who felt I didn't have scleroderma. I did however also show antibodies for Sjogren's Syndrome, and although they weren't sure I had that either, I had an extremely dry mouth, and they put me on medication for that, which I still take (cevimeline) The dentist says I have a very small mouth. In the past 5 years, I have had a liver biopsy, which showed severe swelling and moderate scarring, basically one level below cirrhosis. I also was diagnosed with esophagitis, because of scarring in the my throat leading to trouble swallowing. I am also on a high dose of thyroid replacement medication. Recently, the SCL-70 was retested and again was positive, at 3.9. I have read the forums here a lot and do understand a positive SCL-70 can sometimes mean very little. But I do wonder if I should be more proactive in figuring out if all the various issues I have might be connected in the form of scleroderma. My skin doesn't seem to be involved---my nail beds have been looked at a lot and they seem okay (although my mother has severe Reynaud's) I tend to be the opposite of a hypochondriac---I very much want to just accept all is okay and not have to look further, but it does seem that a lot of the issues I have could be connected, and I would love some feedback as to whether I should be more insistent on seeing a scleroderma specialist. Thanks!
  2. What does antinuclear scleroderma 7O antibodies mean? My score is 6.9. I am so scared. I cannot see a specialist until March 8th. I have respiratory, intestinal and skin symptoms.
  3. I am new to the forum, and need advice, help, consoling. 10 years ago I was diagnosed with Fibromyalgia and chronic fatigue. Then a heart problem, tachycardia and an intoleration to exercise, I was put on an inhaler. Then I passed out and was diagnosed with MS and put on several medications to control it. Eventually, I started choking on my food, it felt stuck in my chest and I would have to vomit it up. This started happening on a regular basis and I finally went in to have my esophagus stretched. I was told that this is not common with MS. I had some scarring, GERD, and a hiatal hernia. I was put on Prilosec. About 5 months later, they had to do it again. Then I fell down a flight of stairs several times and ripped something in my shoulder and needed surgery. During recovery, I healed so fast that my PT said I have Ellers Danlos Syndrome and needed to get it checked out, except for the fact that my skin is to tight. No elasticity in my skin at all. At the doctor, we discussed the E.D.S and which one I have. In our talk, I mentioned that I was experiencing choking again, sporadically, some swelling in my hands and feet with major pain in both upon waking up, mouth ulcers all over my tongue and in the corners of my mouth making it impossible to open my mouth to eat. My hands are always dry and will get a puckered look on my fingers. He ran a bunch of blood tests. As the results started coming in, they all were good. Then he called, my CRP was elevated, my Sed Rate was up, and my SCL-70 was positive at a 7.6. So now, on top of everything else, I have this to deal with. My appointment with the Rheumatologist isn't until October, so I wait. Worried every time I start hyperventilating when I walk up some stairs, or on a walk with my family. Watching my mouth for more ulcers or when my tongue starts hurting. Stress is high as I also found out my son has a Chiari Malformation that needs surgery, at least I can focus on him for a bit. Thanks!
  4. Hello Everyone, I'm 30 years old and found out two weeks ago that I tested positive for ANA (with a titer of 1:1280) and tested positive for SCL 70 (3). I don't have any symptoms (other than cold hands - but it's winter) and the only reason I was tested was because I'm undergoing infertility treatment after having three miscarriages. My infertility doctor sent me to a rheumatologist for further investigation and he said he does not know if or how soon I will develop Scleroderma, but cautioned that my ANA titer was high. Has anyone else had a high positive ANA and tested positive for SCL-70 without developing the disease? It's been truly difficult for me the last couple weeks. Learning more about the disease has somewhat scared me and I can't sleep at night worrying about it. For now, my rheumatologist is recommending that I take one baby aspirin a day while trying to get pregnant again. Has anyone else had trouble with miscarriages while testing positive for both?
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