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Found 6 results

  1. A Low-Cost Steroid Shows Promise for Treating COVID-19. But Take the News With a Grain of Salt. Researchers looking into potential COVID-19 treatments are being hailed as a “groundbreaking development”— but recent history shows it’s worth taking these promising findings with a grain of salt. Time Healthland, 06/16/2020. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  2. Case Report: Eosinophilic Fasciitis Responds Well to Steroids and Methotrexate. There was an excellent response to steroids and methotrexate, which is not a combination therapy that has been tried or mentioned previously. PubMed, Oman Med J, 2019 Nov;34(6):564-567. (Also see Eosinophilic Fasciitis) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  3. Controversies on the use of steroids in systemic sclerosis. This review focuses on the main area of controversy, that is whether corticosteroids should be prescribed in patients with early diffuse cutaneous SSc (dcSSc). Journal of Scleroderma and Related Disorders, JSRD 2017; 2(2): 84 - 91. (Also see Glucocorticoids, Steroids (Prednisone) Warnings for Scleroderma) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  4. Steroids May Be Risky Even in the Short Term. The dangers of long–term use of corticosteroids like prednisone and cortisone are well known, but a new study suggests that even short–term use can have serious side effects. New York Times, 04/18/2017. (Also see Glucocorticoids, Steroids (Prednisone) Warnings for Scleroderma) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  5. First of all sorry if this all makes no sense, I am not good with wording haha My name is Hayley I am aged 23 and live in Bristol, UK. I have had Morphea since I was 7 years old. My mum discovered it and we started going to the hospital on a regular basis. So I have a very deep indentation on the right side of my head it is about inches (hair does cover it but have to wear hair certain way to hide the dip) I have no fat tissue or muscle in my right temple so it dips in (also have to have a heavy fringe to cover) Large area of back and collar area is also discoloured and loss of muscle and fat tissue. As you can see most of my condition is cosmetic and I have had many things done to even out the right side of my body to the left like fat collagen injections, face lift on right side, fat tissue from my legs and abdomen put into pack and front area. My condition also means that I have lost a lot of nerves in the right side of my face. My right eyebrow, nostril and part of lip is paralyzed. I have seen many doctors about this and there is not much that can be done I was bullied in little school and big school, moved schools 3 times. People used to call me dent head or jackal and Hyde because of the difference right and left side of my face. I have accepted that I look different and I try to hide it the best I can with my hair but it does affect me. A lot of people say they don't see it unless I point it out. Now I have had all my surgery I think I look pretty normal About 2 years ago I started to get blurry and double vision in my right eye. I did not think it had anything to do with the condition. Yesterday 13.07.12 I had an appointment to see what can be done about my eye...My Doctor sat me down and told me that they have found inflammation, fluid and white cells behind the effected eye upsetting for me as I never thought it would become more serious and dangerous. He has booked me in for a emergency 3 day treatment undergoing 4 steroid injections to try and get rid of the inflammation. He has scared me of many things that could go wrong and things that may happen if the steroids do not repair the eye. Having this double vision which is getting worse every day is very upsetting. I am faced with.... Not being able to work Vision is not good Not being able to drive Right eye is turning in and very visible Undergoing a lot of ongoing surgery and steroids. I am scared and worried what the future may hold. Has any one ever been through a similar situation or is going through the same thing. I have been told by my doctor that I have a very RARE case of Scleroderma as it effects my nerve system. Thanks for reading. H x R
  6. Hello, I have been up 14 hours today. I was up 19 hours yesterday and I really thought I would crash after that but here I am. This is besides taking medicine to control a rebounding headache that will hit 3 weeks tomorrow. So I was laying in bed, staring into space and bingo, I realized I am on a dose pack of steroids in addition to the one I take daily. Talk about the Energizer Bunny. One more day and I am finished with it...wonder what will happen when it all kicks in. I have been taking it easy today because I expected to get hit with everything from yesterday and am now wondering what will happen when it does finally all hit. The drug we love to hate. Any advice or sympathy is welcome. miocean
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