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Found 4 results

  1. The Scleroderma Education Project (SclerodermaInfo.org) is a 501c3 non-profit organization focused on: 1) providing up-to-date, research-based educational information on systemic scleroderma diagnosis and treatments, and 2) advancing new research focused on understanding the role of abnormal blood rheology in systemic scleroderma pathogenesis. As part of our research efforts, we are conducting a brief survey on blood type distribution in patients with diagnosed systemic scleroderma. If you are formally diagnosed with systemic scleroderma, including diffuse scleroderma, limited scleroderma, CREST, or overlap syndromes such as Mixed Connective Tissue Disorder (MCTD) AND you know your blood type, we would greatly appreciate if you would take one minute to fill out an anonymous, two question survey. Here is a link to the survey: https://www.surveymonkey.com/r/SN2ZSQ6. The survey will conclude on March 31st. We are working with statisticians at the University of Wisconsin in Madison, WI and expect to publish our findings some time this summer. Thank you for your participation in this research study.
  2. Hi Folks, I have been put on a bit more Methotrexate (10mls) and an anti inflammatory. Soon afterwards I started with a sore mouth and then a white patch on my gums. Dentist said it was maybe the drugs but it looked nothing to worry about . Now the gum is still a bit sore but getting better. The tooth leans over and it's the wisdom tooth; today the filling fell out so now I look as if I have a hole in my gum? I might not have, but the tooth leans over. Now my mouth is getting a little tight and I'm not eating and chewing well and my dentist won't fit me with anything to fill the gaps ie infection, small mouth, dry mouth. I hope I don't need it out? With slight problems now also being on benefits, I get treated on the NHS. I did say to him when you can't manage me, would you refer me? Is the Eastman Hospital the place to get referred to if I have problems? Christine
  3. Just diagnosed with scleroderma, most likely systemic. Waiting for more test results. My doctor has given me a prescription for Methotrexate. He said he does not know if it will help me or hurt me and that it is my decision. What? Really? I don't know what to do, I am so scared. Please tell me your stories on this medication.
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