catherinechaos

Stumpy fat finger syndrome

9 posts in this topic

Hi everyone

 

I wonder if anyone could help me by putting a name to a symptom? I have diffuse scleroderma with raynauds and digital ulcers for ages but my index and middle fingers from the top to the first knuckle have shortened considerably and from an x ray I saw the bone has just disappeared. Just below the nail has swollen and is hard and red and shiny. What is this called? Not just stumpy fat fingers I hope!

 

Cathy x

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Cathy x, it is called bone resorption. When your bones in your fingers are being absorbed back into your body. We have information on this site about this common condition in Scleroderma when dealing with Raynauds. Sometimes the finger nails really curl down into the skin at this time also. Giving the appearance of stumpy looking fingers. Welcome to our forums. Sorry to hear we are getting more and more people suffering with our disease's.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Cathy,

I too have the same issues with my fingers but they are just now beginning to get shorter. They are red swollen and hard and the nails curve downward. I don't know the name of this but I really like the term "short stubby finger syndrome". I am new to this forum and am really getting a lot from it.

 

Melanie

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Hi Cathy,

 

I'm sorry you have scleroderma and bone resorption. You can read more about it on our main site, under Bone Resorption and Scleroderma. Our intro to the page says,

 

"In scleroderma, bone resorption may occur with the bones at the tips of the fingers being reabsorbed into the body. In some cases, the tips of the fingernails become attached to the skin."

 

But, I like the sound of Stumpy Fat Finger Syndrome (SFFS) better; it has a special ring to it!


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello Cathy

 

Welcome to the forum! I am only into my third year with sclero so haven't encountered this problem yet but no doubt many others her have.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Cathy,

 

Welcome to the Forums. You've made an instant hit with your Stumpy Fat Finger Syndrome! I'm sorry you needed to find us, glad you did, and really hope you will post often.

 

Best wishes,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Cathy,

I too, have this.

Oddly enough, though..I have one finger (only) that was not affected and that is the ring finger on my left hand. Apparently because of my gold wedding ring set, it was the only finger that didn't change. Had I known at its onset, I would have worn gold rings on every finger/thumb...really!

"Hindsight's always 20/20!"


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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