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kaykay

Sun Reaction

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I got a positive ANA test and a few odd symptoms, so I read all about it and braced myself, but as soon as I think I know what might be coming something else comes (sigh). I can't figure it out.

 

I went for a 40 minute walk at noon yesterday and had a weird reaction after I got back to my desk. Like my whole insides was puffy, I was disoriented, my head felt puffy, I felt taller than I am - is that weird? Like I'm taking up more space than I really am. My right hand, which has given me some trouble in the last year, went numb and non responsive. I couldn't get it to type or roll the mouse, it took about an hour of concentrating to get it functional and it is still sluggish and painful. My left hand is a bit of the same but not as bad.

 

I really just hid it until I went home and told Greg about it, he reminded me that sun exposure does this to me and I guess he's right but it just seems like such an odd reaction. I would expect a rash or something if you have sun exposure problems.

 

So yes, I've felt this before, but not so dramatic as yesterday and never had my hand go 'dead' on me like that.

 

Does anyone else have this reaction? Should I be worried? I see rheumatologist on three month cycle so my next appointment is May 5th (or thereabouts). This sounds like a head problem to me.

 

Today I feel like I spent yesterday crying. My eyes and head are puffy feeling and I'm SO TIRED.

 

Any idea about this?

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Hi Kaykay, sorry to hear you are having problems. If it were me I would be inclined to seek medical advice now-rather than wait. Although your assumption that your symptoms are due to the sun could probably be right, it would be wise to rule out other potentially more serious causes of the numbness and strange sensations you experienced(e.g Mini-stroke).

 

Lizzie

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Hi Kaykay,

 

Well, that certainly is an unusual reaction. I'm not sure it would be categorized as sun sensitivity, per se, because I think that just refers to getting a skin rash from sun exposure. Without a skin rash, I'm guessing it would be something else. But, I'm not a doctor, I have no medical training at all -- not even a current First Aid Certificate <sigh>.

 

Anyway, if I were you, I wouldn't write it off as something due to the sun. In fact, it sounds a little more like maybe an atypical migraine. Do you ever get "real" migraines? There are even such things as exercise-induced atypical silent migraines. I have both regular migraines, and atypical migraines, and even a few silent migraines -- which oddly enough, is a migraine without the headache. The symptoms can be all over the road, including numbness in any part of the body.

 

In any event, it would be something to check with your primary care doctor about. And let us know what you find out, will you?


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello Kaykay

 

Shelley's right about seeing your regular doctor now rather than save it all up for your rheumatologist even though I certainly understand the want to lay everything at sclero's door.

 

A migraine without the pain...yes please! I have had migraines make me feel as if I had sleeping sickness, I just couldn't keep awake, not a bad thing when you're in pain!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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