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Sandy B

Calcinosis

4 posts in this topic

Hi all,

 

Have limited/crest scleroderma/raynauds, so have alot of the usual complaints, skin involvment, GI tract, tendonitis etc. etc. Sometime ago I noticed I had some nodules forming in my right knee, they started off as tiny hard granules under the skin and gradually got bigger and now they have formed a mass on my knee cap. My doctor took a look at it at the time and said it was water on the knee, well nearly a year on, it hasn't gone away and continues to grow, very slowly I hasten to add. My doctor has now said it is fibrosis and I have it developing in my other knee. I am wondering if it might be calcinosis, as when my knee is bent so the skin is stretched tight, the lumps show as white masses under the skin, I'm not in any great pain with it, but I do get days where my knees prickle.

 

Has anyone else got calcinosis and do my symptoms seems familiar to you, would much appreciate your input.

 

Many thanks

 

Sandy B

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Hello Sandy

 

I don't have calcinosis so can't personaly advise but we do have a lot of information on site about calcinosis including pictures of what calcinosis looks like.

 

I hope this helps and take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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I remember reading about someone who had calcinosis on her knee. She said when the doctor removed it it was so big it stood up on the table by itself! Search the forums on it, there are many posts. I have calcinosis on my buttocks. For years it didn't bother me, I could just feel the lumps and bumps. About six months ago they became painful so I showed them to my sclero specialist and she said Oh yes that's from sclero. You can go to a general surgeon and have them removed. I did research on the surgery and some says it works and other say it doesn't. Then I couldn't have surgery even it I wanted to because I was close to a kidney transplant and it would affect my antibodies. I had the transplant and now I can't have surgery for a while, even If I wanted. I sit on pillows and put up with it. It hurts.

 

miocean


ISN Artist

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Hi- I have calcinosis on my fingers. Some are single largish masses but one area has multiple small areas of white nodules. These are only painful when they break the skin. There is a white pasty discharge if they are opened before they come completely to the surface- if left totally alone and they come to the surface, they sort of just dry out and crumble, leaving holes that are slow to repair themselves.

 

Until I got a diagnosis, there were a number of cultures tried, all negative. But the last one was sent to get a detailed evaluation. They even gave me the type of calcium it was to differentiate it from a gouty type. Maybe your doctor coulad do this for you to get a definite answer?

 

I don't suppose that would change the treatment but I always feel better being sure myself.

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