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Amanda Thorpe

My first trip to A&E by ambulance...with sirens!

20 posts in this topic

Hello All

 

I finally had my first trip to A&E by ambulance with sirens blaring...very dramatic! Sunday morning I was home alone and was about to go back to bed and snuggle up with my pusscat who was patiently waiting for me to do so and then the palpitations started. Having had them before I just waited for it to stop but it didn't in went on and on and on and began to effect my breathing. I finally phoned the out of hours doctor expecting to be told that the doctor would come round but was told an ambulance was on its way, I burst into tears and said surely that wasn't necessary! Wrong! I then called Ma over who promptly burst into tears as well!

 

Within 5 minutes the ambulance arrived and they did and ECG discovering that my heart rate was at 220 bpm, normal bpm is 60 to 90 I think. I was strapped into a chair and taken out to the ambulance and let me tell you it's really embarrasing and of course it would be on a day my hair was in need of a good wash and I was in my robe and slippers.

 

In A&E the doctor explained that the electical impulses in my heart had taken the wrong route and that they would give me a drug to stop/start my heart. I then heard the most bizarre thing ever...according to the side effects of the drug I could experience "an impending sense of doom!" Fantastic! The first dose didn't work but the second did the trick, can't say I felt any doom though.

 

I then spend the night on a ward hooked up to a monitor with electrodes everywhere and of course had to be poked with lots of needles...how many times can you poke a needle in my arm and not draw blood? I left Monday afternoon with more medication and an indication that scleroderma was behind the episode...no surprise there then.

 

I now feel like a person with heart problems which I don't like and I don't feel great either, the doctor indicated that the episode had cause some damage to my heart but wouldn't expand on this any further...wait for the tests. Of course I think that the new medications are also contributing to my feeling unwell while I get used to them.

 

I must say that all the doctors and nurses were excellent and my brief stay was nowhere near as bad as I thought it would be BUT I don't plan on a second visit!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Amanda,

 

Wow! You've been through a lot and I've been very worried about you. I'm glad your hospitalization went okay so that you are out now. What a relief, eh?

 

Extra warm hugs and even flowers for you! :emoticon-hug::flowers:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi Amanda

 

I'm so very sorry to read your post; how absolutely terrifying that must have been for you!! :unsure:

 

I've thought about you a lot & like Shelley have felt very worried for you.

 

Glad to hear that your hospital stay was not as bad as you feared & I do hope that they've managed to stablise your heart & that you'll soon be feeling a little better.

 

All the very best wishes to you

 

Jo xx


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

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International Scleroderma Network (ISN)

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What a scary experience Amanda and I hope that you are feeling a little better. Hospital stays are not very nice especially when being rushed in with all the sirens going!

 

Take care & have lots of rest.

 

Buttons

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Amanda,

Ditto WOW! I'm so sorry that you had to go through that experience, but am glad that your doctor called the ambulance so you could be treated quickly. Would you mind sharing the name of the drug that you are on? Sounds like you have a great doctor that really knows his stuff. With everything you have going on, we need to consider you one lucky girl, in spite of it all! A lot of kitty cuddle is good for the heart, so that's my prescription for you today.


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Oh Amanda

 

I just can't believe all this shizzle you are going through!

 

Thinking of you girl and sending loving vibes.

 

Vanessa

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Oh Amanda, it was a shame you were probably feeling too poorly to enjoy the ride and the sirens~ And about that drug that was going to stop and restart your heart, well! That would have caused a feeling of impending doom in me, long before it was administered.

 

Any chance of them moving the tests up? You can tell them every last one of us here on the Forums think you should be their #1 priority.

 

You take it very, very easy and have lots of kitty-cuddling, OK? Janey's right, it is good for your heart!

:flowers:


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Thank you ladies!

 

The drug I was given in hospital to stop/start my heart was adenosine and I'm now on clopidogrel and bisoprolol. The first one is a blood thinner the second a beta blocker, I have no idea why I am on a blood thinner or why I was given blood thinner injections in hospital because I didn't have a heart attack. Why didn't I think to ask?

 

I just looked at my discharge report and it says a diagnosis of likely vasculitic myocardial involvement, I looked up vasculitis and it can be secondary to connective tissue diseases...hmmm I wonder what that could be...and causes inflammation of the blood vessels. The more I know the less I understand and the less I want to know!

 

The report also says SVT and +ve Trop T. I know the SVT is supraventricular tachycardia and that Trop T is troponin but I have no idea what +ve is, any guesses?

 

All I can say is I'm lovin' the weird 'n' wacky world of sclero!


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Oh Amanda, I'm so sorry to hear that you had such a horrible, scary time! I was glad to read that your ma was close by for you, no doubt she helped to give you some comfort in amongst all that chaos. Good to hear you didn't feel any sense of 'doom' either after all that, yikes is an understatement! Get better soon and good luck on your tests (I hope they do them soon so you don't have to wait). Be sure to keep us updated and get lots of rest!


Sending good wishes your way!

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Hi Amanda,

 

I'm very new to the Society as only just diagnosed and still trying to make sense of what is Sclero and what isn't from the stuff I've been putting up with over the years. I have been finding the forum excellent for learning more about the disease and am very glad I found you all.

 

I'm really sorry to hear of your recent problems but am sure those pussycat cuddles will be helping tremendously.

 

Just wanted to say hello, wish you well and let you know (if you haven't found out already) that +ve is short for 'positive', -ve being 'negative'.

 

Love,

 

Caroline

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Hi Amanda,

 

Gene had tachycardia a few times right after his lung transplant. So he was put on heparin shots, warfarin, and several heart meds. A few weeks later they stopped the heparin shots, then eventually gave up on ever getting his warfarin levels right and discontinued that, as well. He remains on diuretic and blood pressure med. But he hasn't had anymore tachycardia, his heart rhythm is normal and it is now a thing of the past. In his case, it was inspired by massive doses of prednisone and the zillion other meds at transplant, combined with a strong cup of coffee and being tremendously excited about having had a successful surgery. Taken all together, how could he NOT have palpitations? So I figure, it was actually of sign of good health, that his heart just screamed, "Enough already, dude!"

 

We have a page on Scleroderma Vascular Involvement that you might find fascinating reading about now. (Note, Gene does not have scleroderma, he has alpha-1 antitrypsin deficiency.)


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello Caroline

 

Thank you for the explanation of +ve and welcome to the Scleroderma Society and the forums.

 

In the beginning being told you have scleroderma is a bit like being hit in the face with a bat, you're all dazed and seeing stars! It does get better though as you realise it's not the beginning of the end just the beginning of a some what bizarre yet interesting journey into the weird 'n' wacky world of scleroderma uring which you'll meet the best people ever.

 

Take care. :happy-day:


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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"Enough already, dude!" Love it! I guess that my heart is just feeling a bit neglected and :temper-tantrum:

 

Thanks Shelley!


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Amanda what a carry-on for you!! hope things are settling down a bit and you must rest+take care of you for a change. I hope all is well with the tests and remember in this topsy turvy world of us 'sclerodoodlies' we are ALL here to keep you going :) :D :emoticons-yes: loving thoughts to you amanda

 

Lynn :flowers:

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Amanda,

I'm on blood thinners due to my chronic atrial fibrillations. When you have arrhythmia, especially chronic arrhythima, there is the possibility of blood clots forming in the heart chambers; the blood thinners reduce that risk. I would assume since you now have a whacky heart with a beat of its own, the blood thinners are to give you some protection. It all just keeps going, and going, and going.


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Oh Dear Amanda, it just gets better each time doesn't it !?! :rolleyes:

 

I know exactly what you mean about the ambulance (completly unrelated to sclero) as I was party to a trip to A&E a few months ago myself, after a fall down the stairs at home. I ended up with muscle paralysis, so they had to pump me full of gas and air before I could try and stand up, and only have a vague recollection of being "escorted" to the ambulance by two paramedics :blink: whilst trying to explain to my neighbours that really, I'm fine ! LOL !

 

I trust that they know what they're doing, and have you on the right medication to help you get back up and about in as short a time as possible, and prevent this very scary situation from re-occuring. I can only guess at how it felt to have all that going on around you whilst feeling your heart going heywire !!

 

Give your kitty a hug from me. LD xx

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What a scary thing to go through. Thank goodness you did get promp help.

That "impending doom" thing is a hoot. Sort of like the doctor-speak "It won't hurt at all" (at least it won't hurt the doctor) and "You'll feel a little sting" (right through your arm and out the bottom of your foot) and my favorite, "Feeling a little anxious?" (right after the doctor has told you that you may be having a stroke.) I know it's a medical term for the doctor but the words "stopping your heart" definitely is high on the doom list with me.

I hope that you are improving daily. Cindy

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Hi Amanda,

 

Have been away for a week so this is the first chance I have had to read about your latest news, how dreadfully scary for you and your family. I know I would have cried too, buckets! Once you get the two pacemakers fitted, hopefully you will feel so much better. I know we British laugh about waiting for buses, you wait for one and two come along at the same time, but I didn't know this could happen with pacemakers too.

 

My youngest son had his heart stopped twice (about 18 months ago), I had just come out of hospital so was unable to go with him, but my eldest son went in my place. Youngest was quite cool, calm and collected about the whole thing, had I been there I think I would have been the one experiencing the sense of impending doom, so I am very glad I wasn't there and I expect he was too!!!

 

This all sounds like a very very good excuse for taking it easy and pampering yourself.

 

You take care

 

Sandy B

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Pampering no, eating...yes. Today I told my husband to just call me Elvis s I ate my way through ice cream number 1...2...3...4...and there's more where they came from...uh huh!


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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