Sign in to follow this  
Followers 0
Vanessa

Pain on deep breathing

7 posts in this topic

When I take a deep inbreath it is painfull.

 

I also have a little tickly dry cough.

 

I was awake all last night worrying about this. It could just be that I have caught a little something because my white blood count is low.

 

But is this what lung involvement feels like?

 

Vanessa

Share this post


Link to post
Share on other sites

Hi Vanessa,

 

I have lung involvement and the first noticeable symptoms I had were a dry unproductive cough and unusual (for me) breathlessness when I exerted myself. I didn't have a pain when I took a deep breath in the beginning, although I would certainly cough on deep inhalation. My lungs would hurt and be quite painful if I overdid the exercise; for instance I got on a pony that was behaving badly and trotted and cantered it around until it was heaving.....unfortunately so was I!! :rolleyes:

 

However everyone is different (and like the other posters on this forum I have no medical training at all, although I do have a habit of telling my long suffering doctor her job!! :rolleyes: ;) :lol: ) and it may simply be that you've picked up an infection due to being on Cellcept; I'm on Azathioprine (Imuran) and do find the same problem. I certainly don't want to make you worry unnecessarily but as you're being monitored very closely due to starting on Cellcept I would explain your symptoms to your doctor when you next see him and perhaps he could arrange for you to have some lung function tests.

 

I do hope that there will be no problem. :)


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hello Vanessa

 

Please see your general practitioner because it could be a number of things and may have nothing to do with the scleroderma. Whatever it is you'll have more peace of mind having brought it to the attention of your general practitioner.

 

Let us know how you get on and take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

I have pulmonary hypertension. It has never been painful. The only symptom for me has been breathlessness. In fact, until the breathlessness became obvious, I wouldn't have guessed a thing was wrong. Rather insidious...

 

Good Luck

 

Craig

Share this post


Link to post
Share on other sites

Hi Vanessa, sorry that you are having chest problems. The fact that you have pain when you breathe in would make me think that it is most likely due to inflammation or infection rather than being a sclero related lung problem. As you have low WBC , you should contact your general practitioner or NHS direct, ASAP. Hope you get things sorted.

Lizzie

Share this post


Link to post
Share on other sites

Hi Vanessa

 

I also think you should call your doctor to have it checked asap...never hurts to be sure. Good luck and let us know what he/she says about it ok.


Sending good wishes your way!

Share this post


Link to post
Share on other sites

hi Vanessa

 

I had trouble inflating my lungs on even the slightest exertion, as if they were in a clamp. And a dry cough, when I was first diagnosed. I couldn't walk and talk at the same time. But after a while on Cellcept and Plaquenil, my lungs are much better.

I have been more susceptable to chest infections, and have had 3 bouts of bronchitis in the last 18 months, but can breath more deeply now, so Im much better.

 

Hope you get some answers soon, Vanessa. Let us know how you get on?

 

take it easy

& best wishes

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
Sign in to follow this  
Followers 0