Sign in to follow this  
Followers 0
Kathy D

Oh Dear, diagnosed with early infertiltiy

9 posts in this topic

With approval from my rheumatologist primary care physician, and specialist, to get pregnant, I stopped methotrexate in March in anticipation of trying to conceive in August - my dreams taken away too soon.

 

At my pre-pregnancy visit my hormones came up in POST-menopausal range, or premature for my age. There is an association with autoimmune diseases and premature ovarian faiure, I doubt we will find the cause, as infertility is not covered under our insurance and is very expensive.

 

thanks

 

Kathy


Diffuse Scleroderma Diagnosed March 2009

Share this post


Link to post
Share on other sites

Dear Kathy ,

 

I want you to know I will keep you in my thoughts and, just perhaps, them ovaries will 'kick start' themselves in a couple of months. How about eating lots of soy products? They are estrogen based. I'm sorry to hear your news.....I wish modern medicine had all the answers.

 

Take care, Everyone.

Margaret

Share this post


Link to post
Share on other sites

Ah, Kathy, I am so sorry to hear that. What a shame~

 

I'll also keep you in my thoughts and hope that good things happen. The 37-year old daughter of one of my oldest friends was diagnosed with breast cancer and at the same time found out she was finally pregnant after having just about given up. She had a mastectomy and carefully tailored chemotherapy. She had a gorgeous little girl on time, and in perfect health about 2 months ago. Don't give up hope yet.

 

The warmest wishes and a big hug,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

Share this post


Link to post
Share on other sites

Hello Kathy

 

I am so sorry, what news to be given. I hope in the long run it turns out to be wrong.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

I can't say how much I wish that it went smoothly for you. Did the doctor say that it might change as your system gets used to the lack of medication?

Share this post


Link to post
Share on other sites

Hi Kathy,

 

I'm sorry to hear of this and send lots of warm hugs to you! :emoticon-hug:

 

Did your doctors explain that premature ovarian failure can be caused by methotrexate, and that often things naturally restore after being off it for awhile? "Awhile" is a rather nebulous term, of course. But ovarian failure doesn't mean that the whole system has entirely failed (in most cases). As I understand it, it means it is less likely to work properly but not completely impossible. Give it some more time, see how things go. You might yet be surprised; unless the doctors have told you that will not happen in your particular case.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

Hi Kathy

 

I'm sorry to hear your sad news...but like the others suggest, try if you can to stay positive in the hopes it is just temporary after all, especially if the doctors didn't say it was fully impossible yet. Hopefully, it is just too early to be 100% sure of anything? Remember, even without complications, these little miracles can take a little longer to happen with some couples.


Sending good wishes your way!

Share this post


Link to post
Share on other sites

I can't tell you how much you kind words meant to me <3 Thank you!

 

I have an appt with a fertiltiy doctor next week and I will let you know how it goes. Shelly, I was not told of the methotrexate effect but have to tell you (I have become a mad scientist with pee on sticks, testing for menopause as well as ovulation) and I hope I am seeing a slight improvement, and praying its not my imagination.

 

My heart and thoughts go out to all you dealing with different and varied sclero issues, I send cyber hugs and hope.

 

Kathy


Diffuse Scleroderma Diagnosed March 2009

Share this post


Link to post
Share on other sites

Hi Ladies,

 

I hope all of you are getting along well :VeryHappy:

 

Just a quick update.

 

We saw the fertility specialist last week. I am "almost" in early menopause but we arent out of the game yet :emoticons-yes:

He is doing genetic testing on me before we make any plans. It appears whatever lucky gene I have that caused sclero and ra might have affected my ovaries too. The gene may have either attacked my follicles and there arent any viable ones left, or attacked my follicles and altered the dna so I cannot produce a healthy child (likely to miscarry due to genetic abnormalities or be born with severe defects). We get the results in 2.5 weeks and I will let you know!

 

I have quit several of my medications in anticipation of pregnancy, (yes, with blessings from my ALL my doctors). I will start a separate thread on that, doing quite well without them.

 

Well wishes to all


Diffuse Scleroderma Diagnosed March 2009

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
Sign in to follow this  
Followers 0