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Neuro Surgeon Appointment

6 posts in this topic

Hi Everyone

 

Just thought I'd let you know how things went yesterday at my neuro appointment.

 

I saw the registrar initially who asked loads of questions and did an examination, he also showed me my CT scan which clearly showed 3 discs almost completely gone and bone spurs sticking out into my spinal canal but it doesn't show nerve damage because of limitations of the scanner. He then got the consultant to come in and see me, who did a bit more of an examination and told me that my ankles and feet are very stiff! Could this be down to the Sclero?

 

Before he decides what to do in way of treatment I need to have a CT Mylogram done, this he said is a bit like a lumbar puncture but instead of withdrawing fluid they inject a radioactive dye into the spinal canal and then put you through the CT Scanner. This helps to give more detail about nerves etc. I must say the thought of it is terrifying me!

 

Has anyone got any experience of one these?

 

Buttons

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Buttons, sorry to hear your complication are adding up. I don't know about the spine and introducing radio active dye into our bodies. It sure tells the doctors what they need to know but down the rode what has it done to us. Hopefully, after years of studies on people and the effects of dyes introduced into our systems it doesn't seem to have any severe effects on us. ( Hopefully)

The ankles and stiffness in them is something I have been dealing with. I have many exercises that are loosening the tendon in the back of the heels and the large tendon under the bottom of our feet I have to hand manipulate while trying to pull my toes towards the ankles. I will be seeing a specialist soon and might be able to give more information. The ex-rays did show I had spurs on my heels. This stiffness can make walking and flexing of the feet quite difficult at times. When you feet don't automatically do what is expected of them it can put you in a state of uncertainty. Things are suppose to work automatically, we shouldn't have to consider what moves they should make. Let us know what results you get from this procedure you will be having.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hey Buttons,

 

I'm sorry to hear about this. The ankle thing I have as well, so I'm assuming it's the arthritis from the slcero.

 

I have severe degenerative disk disease in my neck. So I understand what you are going through. They actually wanted to do the mylogram to me, and I kind of didn't like that idea and refused. So they did just a normal CT scan. I think people go through it all the time without incident, but I just wasn't comfortable with it.

 

Let us know what you find out honey.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hey Buttons! :bye:

 

When is your ct scan? Please update us :rolleyes:

 

I am sorry you have to deal with all this :sick2: hoping they can fix it after scanning you. I would lean towards getting the dye injected so they can see things properly, but thats just me............

 

Take good care


Diffuse Scleroderma Diagnosed March 2009

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Hi Kathy

 

I'm still waiting to hear when the scan is, trouble is we are away next & then back for one week before going off for 2 weeks to Greece! So if I get one through the chances are I will have to reschedule it so will have to wait even longer. The consultant did say urgent but probably what you & I think of as urgent is not the same as what they think.

 

The scan is to give them more information before any decisions what can be done if anything, so I will go ahead but I am quite frightened by the procedure.

 

I will let you know when I hear anything.

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Hello Buttons

 

I wouldn't want the test either, I freaked out at the thought of just a heart MRI! That said the more tests they do the more information they have and hopefully the better and more specific he treatment for you.

 

Keep us posted and take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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