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pawndy

Anemia and Edema Problems

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I was referred to an Oncologist for the Anemia. This doctor ran blood work and told me that my hemoglobin was still dropping (now 9.1) and my iron count was 27 (normal 100). She put me on IV Iron treatment and I am to go back in 3 weeks to see if it jump started my system. My appointment is June 9 in one week. this did help the anemia and the muscle pain in my legs for about a week. Today, I feel worse than ever. All the muscles in my body are taking turns with pain and the edema is back in full force. Does treating the anemia and edema really help when it is a temporary fix? Does it hurt the body more to go back and forth (sort of like yo yo dieting; not good)? Thanks for your input.


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Pawndy

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Hi Pawndy,

 

The answer is a definite yes, the anemia and edema should be treated. Hemoglobin is part of the oxygen transport system and hemoglobin needs iron. If left untreated, anemia and edema can put an big strain on the heart, so they should be treated for that reason if no other. The ideal situation would be to be able to resolve those issues permanently, but if they can't be, they should still be treated.

 

I know it's really frustrating dealing with the yo-yo business. One day you are feeling great and then, whammy, you have a bad day and feel like you might never feel well again. I think it's one of the hardest aspects of chronic illness to deal with. Trust me though, you'll have lots more good days!

 

Big hugs,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Pawndy,

 

Yes, absolutely! You will feel much better, and it will probably take quite a while. I was put in the hospital for transfusions a few years ago because my hemoglobin dropped to 6 and my heart was failing. My legs swelled like balloons. The nurse practitioner explained to me a few days later it wasn't a quick fix, the transfusions kept me safe but it took a long time to get into such bad shape and it would take a long time to get better. She was right. I was put on iron after that and still take it to this day.

 

So even if you never get back to 100% (I never did) it's still definitely important and worth it to be treated and stay on top of the anemia, and you will feel much better over time!

 

Hugs,

 

warmheart :)

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Pawndy,

I was diagnosed with anemia a few months ago. The GI doctor put me on daily iron supplements and vitamin C. It has helped tremendously! My blood counts aren't normal yet, but have been improving. Anemia can cause so many problems other than just being tired so it definitely needs to be treated. Have they determined the cause of the anemia? That's as important as treating the anemia itself. Please continue to work with your doctor on this. Hope you feel better soon!


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Treating anemia ought to increase your energy and make it so you get out of breath less.

 

I have chronic anemia that seemed to happen after a stem-cell transplant to treat cancer (lymphoma). The values never came back up to normal, regardless of nutrition. I take a drug called procrit, commonly used to treat anemia when treating cancer. I believe it has some sort of growth hormone effect with the production of red blood cells.

 

With pulmonary hypertension, I can't afford to have anemia make me more breathless.

 

Higher hemoglobin = more red blood cells to take oxygen to the tissues and more endurance and energy.

 

Craig

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I want to Thank all of you for responding and it really helps.

 

Yesterday, I had my second IV iron treatment. The doctor said that when my irons counts get high enough she is going to give me shots to counteract the effects of the Cytoxin. I wish I had written down the name of the medicine but I was falling asleep. I slept the entire time.

 

Thanks again and I will stop expecting to see improvement quickly.


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Pawndy

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