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miocean

Six minute walk test

19 posts in this topic

I had my fourth six minute walk test today at the hospital where my scleroderma specialist is located. I did research on it before I went and found out that the one I had last year, at a local hospital, when they determined I needed O2, was done wrong. There are very specific directions on how it should be done. The same man did the test as my very first one. I had a forehead oximeter and was connected to 02 in case my level dropped too much. When I was finished he said I did very well. I asked if they had to use the O2 and he said no. He faxed the results to my scleroderma specialist who I saw a little while later. She said the results were so good that I don't need O2 anymore (!) so I am calling the company and having them pick it up.

 

The other good news is that my skin score went from a 16 to an 11. I started out at 45 five and a half years ago so there is quite a difference. Between all of this and a working kidney I feel like a new woman!

 

miocean


ISN Artist

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Miocean, that is absolutely brilliant news! Congratulations!! Can we point new members at you as a real success story? You are living proof that things don't always turn out badly.

 

:happy-day:

 

Great big, very happy hugs,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Wonderful news for you, Miocean!!! :happy-day: :happy-day:

 

May you continue to improve at the same remarkable rate!! :emoticons-yes:


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Wow! So much good news! This brings optimismus (spelling?) into sclero society!

Erika

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Hi Miocean,

 

I am really happy for you, it is wonderful news!

 

 

Buttons

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Fantastic news, Miocean!! Well done!

 

Keep on improving, you are an inspiration to us all.

 

:thank-you:

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Hi, absolutely brilliant. Hope you continue to florish with renewed stamina!! :emoticons-yes:

Happy days!

Lynn x

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Miocean

 

That's absolutely wonderful news...you must be over the moon with happiness and I'm really happy for you too! :happy-day:


Sending good wishes your way!

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Hi Miocean ,

 

I'm so glad to hear you don't need the O2 anymore. I hope the kidney continues to keep performing great, too. :emoticons-yes:

 

Take care, Everyone.

Margaret

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Miocean, this is fabulous news! I am glad you don't need to wear oxygen now. That is a huge relief. I'm delighted for you!


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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I certainly hope I don't have to take back my good news and that all your congratulations were in vain. I went to the kidney doctor this afternoon and while I was waiting for him I took a good look at the report from the test. I hadn't looked at the date and when I did it was the one from 2005! After playing phone tag with my scleroderma specialist's office I finally got a nurse and they are going to mail me a copy of the one from this week. I should still be okay as far as no 02 because my level only dropped to 93% after the test but you never know. I didn't call the oxygen company to take it out yet because I wanted to run it by my pulmonologist and see if he agreed. Good thing. You really have to check up on the doctors and get copies of the reports.


ISN Artist

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Miocean, it might be good to keep your oxygen machine in case you have high humidity days or feel short of breath on any one given day here or there. My mother uses her O2 about 4 nights a month and a couple days for a few hours when she feels week or fatigued. As long as it isn't costing you anything to keep it you might just want to hang on to it. Keep us up to date on your new PFT's when you get your final results.

 


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Well, it seems your congratulations were in order. I sent my current test result to my pulmonologist and he agreed that I don't need the 02. He said I could keep it in case I needed it but I told him Medicare was paying $350/month for it and I am not using it. We decided to remove it and if I needed it bring it in again. They are coming tomorrow to take it out.

 

miocean


ISN Artist

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:bye: Waving bye-bye to your O2 too!!

 

Great news, I'm really happy for you and you certainly have earned having calm seas and sunny skies. Long may it continue!


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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