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Deb1million

Calcinosis care

6 posts in this topic

I have developed calcinosis on a finger joint and it is so painful. I don't know whether to cover it with an elastoplast or leave it open, as there's a small hole where some of the inside has come out.

 

I'm also diabetic and have lupus as well as diffuse systemic sclero, so I know I'm high risk of infection so I'm not sure whether to use any antiseptic cream and keep it covered? Any input would be appreciated.

 

Thanks.

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Hello Debbie

 

I'm sorry you've developed calcinosis, it's not something I have had so I can't share any tips. Have a read of our calcinosis page that might help and I know others with calcinosis will join in because there's quite a few.

 

I hope you find some relief soon and take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Deb,

 

I think you should see a doctor for the calcinosis, to get their advice on what's best for your particular situation, and before things get worse.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello Debbie

 

I just thought, you could always phone the specialist nurses at the Royal Free for advice.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Thanks, Amanda and Shelley, I have already looked at the calcinosis pages on here, but they all refer to advanced cases which require surgery etc. There is no reference to initial care such as creams and plasters.

 

I may be worrying over nothing, but its getting more painful and even hurts when it gets wet. I've had to wash my handa more than usual, as I'm in Scotland looking after my 2 grandchildren while my daughter and her fiance are away for a week.

 

When I get home next week I will call the sclero nurse team. Thank you.

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I have had a few. In fact, I'm typing even more poorly than normal due to a big, fat bandage on one finger after surgery to remove one on a finger joint. I have mostly covered them with a bandage with an antibiotic ointment until they close. Mostly I do this because I take care of farm animals and worry about infection.

 

I agree that diabetes is a serious complication and agree that consulting a doctor would be best.

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