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Jeannie McClelland

Causes and risk factors for death in systemic sclerosis

6 posts in this topic

Causes and risk factors for death in systemic sclerosis: a study from the EULAR Scleroderma Trials and Research (EUSTAR) database. Disease-related causes, in particular pulmonary fibrosis, PAH and cardiac causes, accounted for the majority of deaths in SSc. Tyndall AJ. (PubMed) Ann rheumatologist Dis. 2010 Jun 15. (Also see: Prognosis and Mortality and Pulmonary and Cardiac)

 

This item was posted in the ISN Newsroom. Check the Newsroom every day for the latest scleroderma medical and support information.

 


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Cardiac causes eh...gee I'm so glad to be included in such an exclusive group! I'd rather be Nobby No Mates alone in the corner thanks! :emoticon-bang-head:


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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I'm a 2 out of 3 winner in this lottery - I'd really rather have won a trip somewhere great. :lol:

I guess I ought to tell you all good-bye :bye: now and how much I've enjoyed knowing everyone :wub:, except I don't plan on 'leaving' any time soon!


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Oh, this was such a pleasant read :glare: I'm two out of three also. Nice to know what's probably going to kill me, but on the other hand, as Jeannie said, I don't plan on it happening any time soon! Now, if they'd just get to work and figure out how to reverse these nasty fibroids, etc.


Sharon T.

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Aah well, I've only got 1 out of 3 so I'm well down in the pecking order!!! ;) :lol:

 

I have got fibroids though, Sharon.......does that count?!! ;) :lol:


Jo Frowde

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Well, I've gone from 3 of 3 to 2 of 3! Cardiac came first in 2005, followed by mild PAH and mild pulmonary fibrosis. Still have the cardiac (pacemaker and chronic atrial fibrillations), and the fibrosis has remained in lower lobes and stabilized. I can happily say that my pulmonary artery (PA) pressure has now been rated as "normal"!!!!! I went on Tracleer (Bosentan) 4 years ago and apparently it did the trick on the PA pressure. I've been on half dose for 1.5 years and would like to come off it but I have 3 doctors saying "absolutely not!" I guess I'm outnumbered. We obviously all have beat the odds and will continue to do so!!!! :emoticons-yes:


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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