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CT Mylogram

7 posts in this topic

Well as some of you know from the chat room I have been waiting to get this done since mid May and have just found out the soonest seems to be in September! So much for the neurosurgeon saying this was urgent!

 

To be quite honest I am scared stiff about having it done but I can't have an MRI due to my spinal implant. The waiting is killing me and I just want to get it over and done with especially since my back is very painful and I can't get comfortable while sleeping. I've tried various pillows and without one but I can't settle for much longer than a few hours.

 

Has any one else had a CT Mylogram done and was it very painful? Side effects etc?

 

Buttons

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Hello Buttons

 

I had no idea what a myelography was so looked it up, I understand why you're scared, I would be too. That you have to wait for it is of no help, I'm still waiting for an appointment date for my pacemakers and if it comes through for months ahead I am going to sit down and cry.

 

Try to focus on the fact that you're trying to find out the cause of your pain and once you do it can be addressed. I was a complete wuss at the thought of having a MRI (claustrophobia) but it was nowhere near as bad as I thought and of course the results were of vital importance for me. Your results are of vital importance to you too.

 

I did read that you need someone to go with you to take you home after the procedure but I'm sure you've already been told this?

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Amanda

 

They have told me that it is an overnight stay in hospital and that I will need to take things very easy for a few days, no bending etc. When I spoke to my general practitioner he did say that he'd had two other patients had it done in the last twelve months and both of them suffered with dreadful headaches for quite a few days after.

 

I think I'm more scared about the needle going into my spine even with numbing. When I had my carpal tunnels done the numbing was horrendous, I felt as if it was a very blunt needle that would not go through my skin so was very painful. I'm not sure that I can cope with that and remain still!

 

Buttons

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Hello Buttons

 

I did read about the headaches, have you thought of speaking to your doctor about the best pain relief to have on hand should you get them? Why suffer if you don't have to, that's my motto! I really hope the procedure isn't painful for you, have you considered taking a sedative beforehand? Again maybe worth talking to your doctor about it.

 

Have you considered asking the question about the myelography on another forum like say one for scoliosis or other back problems? It's only an idea but you might get more replies. Of course you could only visit another forum briefly as you aren't allowed to leave us..ever! :lol:

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Well I've finally got an appointment through for the CT Mylogram Thursday but I have to ring in the morning to see if theres a bed available! I will have to ring though at about 7.15am because it takes about an hour & a quarter to get there. I'm trying not to get to worked up about it because the likelyhood is that there will be no bed for me but I'm still very nervous and just want it over and done with.

 

Buttons

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Oh boy, I would be nervous! It's good news that it might finally be happening, but definitely would wind me up (Super-Chick - as in chicken!). Will you lets us know as soon as you can how you get on? I'll have my fingers firmly crossed for you.

 

Warm, but very,very careful hugs,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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hi Buttons

Im hoping that the mylogram went ok, not too painful?

Just to let you know Im thinking of you and wishing you all the best for good news.

Debs

:D

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