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Roslan

My father suffered Scleroderma

9 posts in this topic

Hello every body, I'm Roslan from Malaysia. I want to share about Scleroderma. My father has been almost four years of suffering from this Scleroderma. But in Malaysia no doctor that can be healing or giving any medication to reduce the pressure of pain experienced for my father. I hope someone can give an opinion about this disease. Thank you. Help me please. Sorry because my english not well. :)

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Hi Roslan,

 

Mengalu-alukan! Welcome to the Forums. I'm sorry your father is suffering from scleroderma. It is very hard when someone you love has a disease. I hope we can help with some information.

 

Your English is just fine, but as it happens we do have some information in Malay. Here is a page with basic facts translated to Malay. I don't know if you and your father could travel to Australia, but here is a list of scleroderma experts in Australia. You might also try contacting the Arthritis Foundation of Malaysia for more information.

 

Best wishes,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Thanks so much Jeannie McClelland. I am very happy that you have time to reply here. Just now, I try looking for more money and going to Australia with my father. Thanks so much again. :)

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Dear Roslan,

 

Welcome to Sclero Forums! I'm sorry your father has scleroderma and hope that you will be able to find a scleroderma expert to help him. Remember that just going to Australia for medical care isn't helpful in itself, that it is further necessary to see an Australian Scleroderma Expert.

 

Please give your father an extra warm hug, just from me! :emoticon-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello Roslan

 

Welcome to the forum and I hope your father is soon able to benefit from seeing a scleroderma expert.

 

Take care and keep posting.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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You are welcome, Roslan. Post anytime and as often as you like, even if it is just to chat. It really helps to have people who understand to talk to.

 

Best wishes to you and your father,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Roslan

 

It's so good that you are finding ways to help your dad. He must be very proud of you!

 

I'm sure you'll find lots of good information here. It is a great place to ask questions. Your English is good, so don't be shy!


Sending good wishes your way!

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