miocean

6 months today!

10 posts in this topic

The time has passed quickly but today is the 6 month mark of my transplant. I am doing really well. My white blood cell count (WBC) keeps going up and down but my doctor doesn't seem to be concerned, says that happens, I just have to be careful that I don't catch a cold or get an infection.The frequent urination at night is slowing down. I still get up a couple of times a night but nothing like before. I have so much more energy and in many ways am back to my old self. I've made the effort to see my friends, something I didn't do while on dialysis, either because it took up most of my time or I just didn't have the energy. I met with my childhood friend for lunch the other day and we spent 4 hours talking. I am meeting with friends I used to work with and have a new group of friends through the non-profit I am involved in. I have come to realize through my illness that friends and loved ones are the most important things in life and should be treasured.

 

The new thing is I am very stiff especially by the end of the day. I am attributing it to being more active and scleroderma. I see my specialist the end of September, am having an Echo and PFT then as well. My skin is soft again and I have expression in my face.

 

I am very grateful to my donor and his family. I sent a card to them through the Organ Sharing Network updating them on my good progress and thanking them for this gift of life.

 

miocean


ISN Artist

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Hello Miocean

 

It doesn't seem 6 months more like 6 weeks! It's great to hear that you're going from strength to strength and in doing so inspiring others. How marvellous that you're able to send your thanks to the donor's family.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Miocean:

I have been following your story, and am so happy for you! Thanks for taking us along with you on an "incredible journey". Good luck for a great future. Hugs - Lisa


Life is NOT meant to be a struggle. Life is meant to be joyously abundant.

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Hi Miocean

 

Time certainly flies when you're enjoying yourself!!! :VeryHappy: :lol:

 

I'm so pleased that your transplant has been such a success & will give encouragement to other people as well! :emoticons-yes:


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi Miocean

 

I still like hearing your good news...keep it coming!


Sending good wishes your way!

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Hi Miocean ,

 

I, too, am amazed it has been six months already. WOW!!! Glad everything is going well for you. :emoticons-yes:

 

Take care, Everyone.

Margaret

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Congratulations- it's good to hear of your success.

BTW did you celebrate with your kidney by sharing something special to drink? :)

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Miocean, to quote one of my old favorite TV characters, live long and prosper. You are an inspiration and a 'gladness' and deserve everything good in life.

 

Warm hugs,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Happy 6 month anniversary miocean!

 

I am so thrilled that you are doing so well and feeling much better.

Having the ability to be more active is awesome in itself!

 

Isn't it wonderful to have soft skin again?! The things that can be taken for granted, those of us who have experienced the alternative...are so very grateful for what we ARE able to have!

 

My best wishes to you :emoticon-hug:


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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