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Has anyone experienced Hearing Problems?

4 posts in this topic



I work full time but felt like I had hit a massive brick wall on Monday morning. I just managed the bathroom and back to bed. I have slept for days.


My left eyebrow has been swollen for about 5 months and the swelling has moved to my temple and down across my left cheek - also going into my hair line above my ear. I hate a breeze blowing across my face because one half of my face feels very different from the other. My swollen temple also pushes against the arm of my glasses - none of this is painful it just feels uncomfortable. However the swelling has obviously moved on towards my ear and whilst hitting this brick wall of exhaustion, I have also become very hard of hearing in my left ear.


Has anyone else experienced this? I visited a locum general practitioner who confirmed I have not got any kind of infection or blockage but did not know what else to tell me.


I am back to work today - a necessity - my arms and legs are made of lead and I can't hear properly - would dearly love some reassurance.


Kind regards



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Hi Jane,


There are a number of autoimmune-related hearing difficulties but what you are describing sounds well beyond the sort of onset that I understand them to have. I'd think this warrants an urgent call to your rheumatologist. The swelling sounds very alarming as does the deafness. I think prompt and proper treatment would be necessary to prevent any permanent damage. Please let us know how you are getting on, OK?

Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hello Jane


Hitting a brick wall is a term I have heard before in reference to fatigue. The hearing loss I have not come across and I'm with Jeannie, ring your rheumatologist or specialist nurse if they have one.


Please let us know how you get on and take care.

Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Thank you both so much for your advice.


I have contacted the Local Hospital Specialist Nurse has in turn forwarded my concerns to Mr Rheumatologist who is returning on Monday - hopefully he will come up with a logical answer!!


Will let you know.


Once again many thanks for your support - it really is so very much appreciated.


Best wishes



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