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running to loo

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Hi Folks

I was diagnosed in 2007 with overlap Scleroderma with R.A . I only have mild scleroderma and amdoing very well on 10mls of MTX And in remission with the R.A I can track both back a few years before I flared up in 2007, so I may have had both for a few years ?


I have lost my winkles now and my Raynaud's plays me up. The skin sometimes tightens up on my scalp and face but nothing really. My top lip has been tight for 2 years . Don't think I have a tight mouth as such. My skin is also bad - I have roseasa (acne) which is also on my body . I think things are changing but still in remission. So as you can see Slcero is mild compared with some one full blown .


What I wanted to ask is I now run to the loo more then ever. In fact it's a nuisance. I am on long term antibiotics which don"t help should be off them in a week or 2.


But the running to loo worse then ever. Could any body give me some advice? I have read the leaflet and it sounds like me, as well slight leaking. Could it be in the mind. or should I be seeing about this? I am now having double appointments with Dermatology and Rheumatology next being in November.


My Rhuemalogist has seen lots of scleroderma and knows his stuff. My Nurse says it's IBS and she knows her stuff as she was once a gastric nurse .

I also have had reflux for years .


So what do you think? Next appointment ask about the bowel? In meanwhile can anyone give me any tips about rushing to loo. Ha, I was walking on a 2 mile walk last week to see a waterfall and ran twice to the loo within 10 mins and nearly did not make it back. That would had been nice in the middle of no where ha ha



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Hi Christine,


Yep, I'd definitely ask about the bowel! (In fact, I did. :blush:) The GI specialist reckons my symptoms (they sound like yours) are due to IBS and gave me a prescription for an anti-cholinergic/anti-spasmodic medication (Hyoscyamine) that I dissolve under my tongue whenever I think I'm going to have an emergency. Because it works by slowing down the natural movements of the gut and relaxing muscles in many organs ( the stomach, intestines, bladder, kidney, gallbladder), it isn't something I would want to take all the time at this point. Also since it also lessens the amount of certain body fluids (e.g., saliva, sweat) and I have sicca syndrome as it is, I try to limit how much I take. But boy, it has really been a lifesaver when I've been out and think I'm going to be caught short.


I also have a small version of a diaper bag that I can slip in my purse or rucksack containing clean knickers, incontinency pad, and some wipes. That's come in handy a number of times~ Life sure does come full circle, doesn't it? :P


Warm hugs,

Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hello Christine


Long time no hear! Sorry you're having bowel problems, they're not nice expecially urgency and leaking. Do talk about your bowel issues at yout next visit because as Jeannie has already said there are things that can help. We have information on site about bowel involvement in scleroderma that you might find helpful.


Take care and keep posting.

Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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