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SaraM

Surgery for Raynauds?

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Hello, all. I have heard that there is a surgery called a "sympathectomy" that has been used with some success to reduce symptoms of Raynauds phenomenon. Does anyone have any more information?

 

Sara

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Hi Ladies,

 

The original link was a bad one - not sure why it didn't go where it should have (just stubborn maybe), so I have replaced it with one that does. Those are research articles. The one that I think was intended should have gone to the photo repository on sympathectomy.

 

:emoticon-bang-head: Gotta love technology~ Sometimes it really reminds me of a soup sandwich.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi,

 

I have had a thoracic sympathectomy, actually two or bi-lateral. What they do is go in under your arm with a small scope and camera. They cauterize a nerve that is responsible for the contraction and dilation of the small blood vessels in your hands. It worked for me on one side but not the other. I'm not sure of the success rate, but if it doesn't work, it's just the same as before. The hand where it did work is warmer than the other but still can get attacks. Kind of depressing because the change is not huge if it does work, and you go through a surgery for nothing if it doesn't. Also--the side effect--excessive sweating on the side where it didn't work. That's because the nerve they cut is the same one responsible for perspiration. If some has excessive sweating, they cut that nerve and the sweating stops, so that happens to us too. No sweating if it works, but for me all my sweat is on one side of my body! Weird and uncomfy. The sympathectomy they do on the hand itself was not recommended for me, because my doctor says I have so few blood vessels in my hands I would never heal. Good luck in your search.

Karen

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Before you have surgery ask about trying fluoxetine. It helped me a lot with my Raynaud's, when I couldn't handle the calcium channel blockers, and the nitrobid ointment didn't help either. I wasn't comfortable with surgery, eventually after about a year, my ulcers started healing and have been rather stable.

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