Margaret Posted February 15, 2007 Share Posted February 15, 2007 Hi Everyone....a while back, when I first joined this site, someone mentioned the sensation of cobwebs on their face. Gareth has started to slap his face.....usually very suddenly and around his mouth. I ask him 'what was that for?' and he just gives me a 'lost look.' Is it an internal sensation or like something is on the skin outside? I wash his face with a warm washclothe but he keeps doing it. Take care, Everyone. Margaret Quote Link to post Share on other sites
Sweet Posted February 15, 2007 Share Posted February 15, 2007 Margaret - That is a good question. I just had the sensation while I was reading your post and I'm sitting here trying to decide if it felt more like it was inside or on the surface of my face......I guess it felt more like a hair a stray hair fall across my face and I needed to brush it off, so I would say it felt more surfacy. Sorry not sure if this helps much. Quote Link to post Share on other sites
barefut Posted February 15, 2007 Share Posted February 15, 2007 Hi Margaret, That was probably me who mentioned the cobwebs. It's a sensation that feels like I just walked through a cobweb and sometimes, like Sweet said, stray hairs falling across my face. I also get sensatons that spiders are crawling in my hair or bugs are scurrying through my hair,across my scalp. Other sensations I feel sometimes is that of papercuts on my hands, forearms, elbows and shins. It's an external feeling to an internal thing for me. Hope this gives you some insight. Love, Barefut Quote Link to post Share on other sites
KELLYB. Posted February 15, 2007 Share Posted February 15, 2007 Hi there Margaret - I haven't been on the boards for a long time, computer problems, but I am so glad I can be part of this again. I too have the sensations, bugs. My friends poke fun of me and tell me I have bugs. I think it can be summed up to the dry itchy skin I'm sure most of us have. If I would count how many times a day I scratch an itch.... moisturize, well and often is what seems to help me some. Good luck :> kelly Quote Link to post Share on other sites
Margaret Posted February 16, 2007 Author Share Posted February 16, 2007 Hi Sweet & Barefut , Thanks....I thought it was something to that affect, but I don't understand his slapping himself. I have been reading through so much in the medical section trying to figure out what is SS related. I came across some stuff on the Cognitive Impairments, too, that go along with SS and e-mailed them to one of his teachers who gave him detention the other day because he refused to read out loud in class. He told me 'I don't understand.' Like I said before, you guys are my voice to understanding this disease........you have no idea how much I apprectiate it. Take care, Everyone. Margaret Quote Link to post Share on other sites
Elehos Posted February 16, 2007 Share Posted February 16, 2007 Hi Margaret, There are so many weird sensations that can hit, and he might be getting a combo. When the little calcium crystals start popping through my chin, it's a sudden prickly or pricking feeling that will hit around my chin and mouth area, and it can feel a bit like a bug trying to bite. Not painful, just crawly or uncomfortable on and off. Has he developed any little white pimple like marks on his face? They sometimes look like tons of little white heads before they pop through, so it was just a thought. Sometimes they're still too deep in the skin to see, and that's when the prickling starts. Once in a great while I could also get "electrical shock" sensations, but no news from the doctors as to why. It simply seems to be a nerve reaction, and with all the calcinosis turning up lately, it wouldn't surprise me if that's all it is. The cobweb sensation seems to be a common one, but I usually brush at the sides of my face, not grabbing or slapping--sometimes something was there, so I learned to check (ha, ha). Hope this helps a bit! Best wishes to you and your son, Elehos Quote Link to post Share on other sites
Margaret Posted February 16, 2007 Author Share Posted February 16, 2007 Hi Kelly , Thanks for the response. My son was just diagnosed with sine Scleroderma last Nov after they found he had esophageal dismotility. He's 18 years old and has Down syndrome and autism. The autism limits his speach, emotions, pain, etc. I never know what is going on and how he feels. This site is a blessing for me because people tell me how they feel and I can relate that to Gareth. Take care, Everyone. Margaret Quote Link to post Share on other sites
emmie Posted February 16, 2007 Share Posted February 16, 2007 Margaret, I just want you to know that you are a wonderful mom. Gareth is a lucky guy to have you in his corner! xoxo emmie Quote Link to post Share on other sites
barefut Posted February 16, 2007 Share Posted February 16, 2007 Elehos, Coincidence you should post about this - I just experienced for the first time tonight the bug bite sensation on my lower shin. I have had a vacation from skin sensations and now they are all back again and annoying. I've had itchy patches on my lower legs and when I scratch them it burns. My face is starting to itch too. Sometimes I want to rip my nose off! aaaaaggggghhh! (sorry for the graphics) And Margaret, I second emmie's post. Gareth is a lucky young man to have you for his mom. Barefut Quote Link to post Share on other sites
Patty1 Posted February 16, 2007 Share Posted February 16, 2007 Hi Margaret, I am glad you brought up the subject of weird sensations..but I am sorry for the circumstances for you. I haven't mentioned the strange sensations I have experienced over the last year to my Rhemy,mainly because I was afraid she would think I am a hypocondriac... or nuts, and they include a numb/tinglely sensation over the bridge of my nose, extending down along my "laugh lines" to my lips..(I have a rash there now that has been there since early December) I guess you could call it like a cobweb sensation,,,and other areas as well. There are times I get "the itches" so bad I want to scratch my skin off. It tends to happen in clusters of time, and then subsides, only to be replaced by another area affected. It usually feels like it is in the skin.. It is such a relief to be able to talk to others who are experiencing similar symptoms and who can offer help, encouragement and understanding. Your son is indeed blessed to have such a wonderful Mom. Keep us posted. Warm Wishes, Patty Quote Link to post Share on other sites
Thomas Posted March 18, 2019 Share Posted March 18, 2019 I have these symptoms ( like hair or cobwebs on my face) It's very irritating, I wash my face and it is still there. I believe my symptoms are a result of Gabapentin use, anytime I taper off the dose I get those cobweb feelings . The other thought is, static electricity. I have made my own pillow from small torn pieces of foam ( my pilliow) And I think while sleeping in it I charge my hair with a generous amount of static electricity which tends to attract dust and hair particles to my face ? I'm not sure what's going on , I think it has more to do with the Gabapentin , which is a nerve pain drug , so it's affecting my nerves. Quote Link to post Share on other sites
Lynnann Posted April 7, 2019 Share Posted April 7, 2019 I never talked to anybody before who felt these same sensations-I also feel like something "light" like a cobweb is touching my face, (especially around my eye lids) or something is crawling around on my head; my feet and hands do the burning prickly thing and now my rear end! Always with the crawly, spidery, sometimes even itchy sensations; I sure hope things get easier for you and your son. Quote Link to post Share on other sites
Lucym4345 Posted March 19, 2020 Share Posted March 19, 2020 Hi everyone, I’m at a loss regarding my condition and I was hoping someone can relate to what I’m going through. Every few months I start up get a feeling on my face scalp, mouth, ears, nose that there’s something crawling all over me . When it gets in my eyes my vision get blurry and when it gets in my throat through my mouth my breathing is labored . I read a lot about “crawling sensations “ but this is physically affecting my body. I know it’s more than just a sensation because when people get near me , it’s a matter of minutes before they start to scratch their faces and neck. It’s comes on randomly and eventually subsided but it feels like a web like substance is in my eyes and nose. I have made an appointment with a dermatologist I’m hoping I can find answers . If anyone can relate , please, your input is welcomed and needed . Thank you Lucy Quote Link to post Share on other sites
dimarzio Posted March 20, 2020 Share Posted March 20, 2020 These feelings of cobwebs and something crawling on your skin can be a symptom of Fibromyalgia, I believe. I get these feelings sometimes, especially as I am about to fall asleep. To me it does actually feel like a fly has landed on my face, though sometimes it might really be a small insect. Quote Link to post Share on other sites
Magnus Posted April 3, 2020 Share Posted April 3, 2020 On 3/19/2020 at 6:16 PM, Lucym4345 said: Hi everyone, I’m at a loss regarding my condition and I was hoping someone can relate to what I’m going through. Every few months I start up get a feeling on my face scalp, mouth, ears, nose that there’s something crawling all over me . When it gets in my eyes my vision get blurry and when it gets in my throat through my mouth my breathing is labored . I read a lot about “crawling sensations “ but this is physically affecting my body. I know it’s more than just a sensation because when people get near me , it’s a matter of minutes before they start to scratch their faces and neck. It’s comes on randomly and eventually subsided but it feels like a web like substance is in my eyes and nose. I have made an appointment with a dermatologist I’m hoping I can find answers . If anyone can relate , please, your input is welcomed and needed . Thank you Lucy Hi Lucy, Just want to let you know you are describing precisely what I’ve been experiencing the last 5 months, also with affecting other people when you're around them and they start to scratch. Are you still having these symptoms? Regards Magnus Quote Link to post Share on other sites
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