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Margaret

Cobwebs On Face?

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Hi Everyone....a while back, when I first joined this site, someone mentioned the sensation of cobwebs on their face. Gareth has started to slap his face.....usually very suddenly and around his mouth. I ask him 'what was that for?' and he just gives me a 'lost look.' Is it an internal sensation or like something is on the skin outside? I wash his face with a warm washclothe but he keeps doing it.

Take care, Everyone.

Margaret

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Margaret -

 

That is a good question. I just had the sensation while I was reading your post and I'm sitting here trying to decide if it felt more like it was inside or on the surface of my face......I guess it felt more like a hair a stray hair fall across my face and I needed to brush it off, so I would say it felt more surfacy. Sorry not sure if this helps much.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi Margaret,

 

That was probably me who mentioned the cobwebs. It's a sensation that feels like I just walked through a cobweb and sometimes, like Sweet said, stray hairs falling across my face. I also get sensatons that spiders are crawling in my hair or bugs are scurrying through my hair,across my scalp.

 

Other sensations I feel sometimes is that of papercuts on my hands, forearms, elbows and shins.

 

It's an external feeling to an internal thing for me.

 

Hope this gives you some insight.

 

Love, Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Hi there Margaret - I haven't been on the boards for a long time, computer problems, but I am so glad I can be part of this again.

I too have the sensations, bugs. My friends poke fun of me and tell me I have bugs. I think it can be summed up to the dry itchy skin I'm sure most of us have. If I would count how many times a day I scratch an itch.... moisturize, well and often is what seems to help me some. Good luck :>

 

kelly

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Hi Sweet & Barefut ,

 

Thanks....I thought it was something to that affect, but I don't understand his slapping himself. I have been reading through so much in the medical section trying to figure out what is SS related. I came across some stuff on the Cognitive Impairments, too, that go along with SS and e-mailed them to one of his teachers who gave him detention the other day because he refused to read out loud in class. He told me 'I don't understand.' Like I said before, you guys are my voice to understanding this disease........you have no idea how much I apprectiate it.

Take care, Everyone.

Margaret

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Hi Margaret,

 

There are so many weird sensations that can hit, and he might be getting a combo. When the little calcium crystals start popping through my chin, it's a sudden prickly or pricking feeling that will hit around my chin and mouth area, and it can feel a bit like a bug trying to bite. Not painful, just crawly or uncomfortable on and off. Has he developed any little white pimple like marks on his face? They sometimes look like tons of little white heads before they pop through, so it was just a thought. Sometimes they're still too deep in the skin to see, and that's when the prickling starts. Once in a great while I could also get "electrical shock" sensations, but no news from the doctors as to why. It simply seems to be a nerve reaction, and with all the calcinosis turning up lately, it wouldn't surprise me if that's all it is. The cobweb sensation seems to be a common one, but I usually brush at the sides of my face, not grabbing or slapping--sometimes something was there, so I learned to check (ha, ha). Hope this helps a bit!

 

Best wishes to you and your son,

Elehos

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Hi Kelly ,

 

Thanks for the response. My son was just diagnosed with sine Scleroderma last Nov after they found he had esophageal dismotility. He's 18 years old and has Down syndrome and autism. The autism limits his speach, emotions, pain, etc. I never know what is going on and how he feels. This site is a blessing for me because people tell me how they feel and I can relate that to Gareth.

Take care, Everyone.

Margaret

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Elehos,

 

Coincidence you should post about this - I just experienced for the first time tonight the bug bite sensation on my lower shin.

 

I have had a vacation from skin sensations and now they are all back again and annoying. I've had itchy patches on my lower legs and when I scratch them it burns. My face is starting to itch too. Sometimes I want to rip my nose off! aaaaaggggghhh! (sorry for the graphics)

 

And Margaret,

 

I second emmie's post. Gareth is a lucky young man to have you for his mom.

 

Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Hi Margaret,

I am glad you brought up the subject of weird sensations..but I am sorry for the circumstances for you.

I haven't mentioned the strange sensations I have experienced over the last year to my Rhemy,mainly because I was afraid she would think I am a hypocondriac... or nuts, and they include a numb/tinglely sensation over the bridge of my nose, extending down along my "laugh lines" to my lips..(I have a rash there now that has been there since early December) I guess you could call it like a cobweb sensation,,,and other areas as well. There are times I get "the itches" so bad I want to scratch my skin off. It tends to happen in clusters of time, and then subsides, only to be replaced by another area affected. It usually feels like it is in the skin..

It is such a relief to be able to talk to others who are experiencing similar symptoms and who can offer help, encouragement and understanding.

Your son is indeed blessed to have such a wonderful Mom.

Keep us posted.

Warm Wishes,

Patty

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