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WestCoast1

Motility?

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Hello there,

I have heard many of you say that you had motility problems. Is this when the food that you swollow gets stuck or is slow going down? Do you feel this sensation

in the very back of your throat or more in your esophogus? Do you tend to choke on the food, or is it just stuck and feel awful as it goes down?

 

Do you find yourself excusing yourself from the table just put your head back and extend your neck to let the food pass down?

 

Thank you so much~


*WestCoast*

 

********

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Hi have the same questions as Erin,

 

I will keep an eye out for everyones experiences. I am still waiting to be called up for my scope to see what is going on.

 

Hugs,

irene

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Hi,

I know when I speak about motility I am saying that my stomach takes a long time to empty into my intestines. I am not a doctor but I would think it could mean for the whole digestive tract. I am also constantly constipated. I had a gastric emptying study that showed the slow emptying. It sounds like you have a difficult time swallowing. Have you discussed this with your GI? Sometimes I feel like I am swallowing glass- I feel every edge of the food. I hope that I have answered some of your questions. Take Care

Nan

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I have esophageal dismotility which means that the nerve endings and the natural downward wave which takes the food down to the stomach opening is damaged because of fibrosis!

The wave I'm talking about is an involuntary motion which takes place in the esophagus when you eat. This is how it has been explained to me. Scleroderma has caused the dismotility.

I have almost total loss of motility -- if I eat the food sticks in the esophagus causing pain. I cannot regurgitate the food because the of the loss of motility so if I was to eat anything I could choke if in the night I lie down too low. Sometimes I find it hard to drink but I'm on an enteral feeding tube now so I manage quite well.

I recenly had a scope which showed that the opening to the stomach was also damaged, therefore I have no muscle to keep food in my stomach -- it's almost like an open door.

My problems may sound extreme and indeed they are. Not everyone will suffer motility problems to such a degree it's just that my problems worsened due to surgery.

I hope I've explained things a little.

 

Love and Hugs

Barbs xxx

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Hi,

 

I have times when I choke on my food...and I have learned that there are some foods I always choke on and others that go down easily. For example, anything that has a lot of particles (biscuits, rice), I always choke and others that are smooth and can slide down easily work great. I also get a feeling sometimes of food being stuck in my esophagus (like sometimes when I take my nighttime medication, I can just feel it sitting there and have to try to drink lots of water to push it down).

 

I hope this helps.

 

Warm wishes,

Heidi

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Hi Westcoast,

 

The first stricture seems to be down in my esophagus, at the base of my throat just above the collarbone, but the feeling can extend to the back of my throat causing nausea on certain days. Last year I began to get a second one about mid-chest, and the intensity of the feeling, degree of tightness, and ability to eat can change day by day or hour by hour. Yesterday I had difficulty getting a sip of water down without pain, and other days I can eat most things, although I do feel them going down roughly, and there's always what I call the "stuck jellybean" sensation although the food has gone down or even when I haven't eaten. So far it's more of an annoyance for me than anything, although some people like Barbara have serious problems. Hope this helps!

 

Best wishes to you,

 

Elehos

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I don't have a problem getting foods down yet. The problem for me is getting my stomach to empty fast enough and then passing it out. It is increasingly getting worse over time, and I will be asking my rheumatologist about some sort of treatment when I next see him.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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for me I have slow everything. The food passes very slow in my system. I also get food stuck and I choke on it at times. I also have reflux.

 

I find that I have to watch what I eat. No chocolate and cheese. also thick things seem to be harder to go down.

 

Hugs,

Patty


Hugs,

Patty

 

If Life hands you lemons, make lemonade.

 

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

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Pam,

I'm on 5mg of Reglan to help empty my stomach out. I was told that a normal person's stomach will empty in 30 minutes while I take 2 hours. So I take the reglan with nexium at dinner time and then again 30 minutes before bed. It certainly has done the trick. My acid reflux is finally under control. All the best. Gidget

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Hi Westcoast,

 

I have motitility problems too. I had an esophageal motility test done a year ago. I had to swallow a nasty radioactive mixture and then lie in an extremely uncomfortable position, on my side and drink water while they watched it go down on a monitor.

 

It didn't go down, so I had to prop myself up gradually until they saw it start to move. The proceedure wasn't painful but just very uncomfortable.

 

The test also showed that my lower esophageal sphincter stays open allowing food to creep back up if I lie down with anything in my stomach. So it's early dinners and no bedtime snacks for me.

 

Like Elehos said, I also have good days and bad days with it and there seems to be no rhyme or reason as to why or what works or what doesn't, to help or prevent it. Sometimes even a drink of water on an empty stomach feels like I swallowed an egg whole. I haven't experienced any pain with it though.

 

Certain foods, especially chocolate , aggravate it. No more salsa for me either :( Even decaf has started bothering me.

 

My pulmonologist said that it's possible to aspirate reflux while you sleep and it can contribute to lung problems. Prilosec controls the acid but I can still have (non acid) reflux at night unless I go to bed on a totally empty stomach and sleep in my recliner.

 

Hope this info helps.

Take Care,

Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Hi Westcoast,

 

I too have motility. I just called the doctor today because I ate at 9pm last night and I am just now at 5pm the next day getting hungry. NOT GOOD> Makes me nauseated when it is like this. I take Motilium at 2 a day but hope I can increase it during this flare. I have a question for acid reflux. Does anyone here have acid come back up like coffee while you are sitting up and does it cause pain in your chest after you eat?

I hope you feel better. I have not had any side effects from Motilium.Susie54

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Hi again,

Well thank you so much for EVERYONES input. You all are a great source of knowledge. :)

 

Irene, i hope that you found some answers in this thread as well.

 

Susie54, the answer is yes. I have that same reflux while in an upright position that is acidy like coffee. as for the pain in the chest after eating, it doesn't seem to last long enough to really bother me. (of course sometimes it is worse than others) I assume that it is tied in with all of the other upper GI issues. I hope you find some relief soon and if you get some useful advice from the Dr. i would be interested in hearing it.

 

i feel like I know more about what is going on with the motility issues and will definatly bring it up at my upcoming GI appointment.


*WestCoast*

 

********

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I also have motility problems that seem to vary. I have a bad reflux problem. Nexium and eating small amounts has helped. Sometimes I have no problem, but other times I becomes distended from drinking a cup of coffee or water and it just sits there. I need to have some type of snack in the evening as I am diabetic. It has been trial and error to figure out what will "move along" before I lay down at night.

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Hi, Erin,

 

I don't think I have motility problems, but I do have acid reflux. What works for me is Prilosec. It has almost completely gotten the reflux under control. Occasionally, I will chew an antacid tablet in addition, but that's not usually needed.

 

Before I started the Prilosec, I thought I had the acid reflux under control with the chewable tablets. What I didn't understand was that I was chewing the tablets when I was feeling the acid and wanting relief, and, although the chewables did neutralize the acid, the acid was scarring my esophagus while it was there! Medicines like Nexium and Prilosec are meant to stop the acid from coming in the first place.

 

It had reached the point that I never made it through a meal without having to excuse myself and go bring up the food that was stuck in my throat. Sometimes it felt as though it was stuck high in my throat, but sometimes, it felt more like it was stuck right in the middle of my chest. It was painful and scary, not to mention embarrassing!

 

This medicine has worked so well for me. And, eat your hearts out everyone: I can even eat chocolate!

 

 

 

Mary in Texas

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