• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
Sign in to follow this  
Followers 0
LisaBulman

Right hand sympathectomy

14 posts in this topic

Last Tuesday I had a right hand sympathectomy. My Raynaud's was out of control, ulcers on my fingers for 4-5 months at a time and even throughout the summer. I had tried every available option out there. In the past 10 years I have tried numerous meds (most with side effects I just couldn't tolerate)and three trials as well too. Finally decided to have the surgery and it was relatively easy. I arrived at the hospital at 7:15am, went into the OR at 9:45 and I was home by 1:30 in the afternoon. The block I was administered lasted more than 24 hours and when it wore off I was waiting for the pain to set in. It never happened. I have been relatively pain free. On Sunday I took off the 1/2 cast and changed my bandages. The only place I am sore is at the incision sites. Honestly I can't believe how easy an operation this was. This might sound crazy but I can't wait to get my other hand done!! I have already noticed a difference with the Raynaud's. It is not 100% but it is a HUGE improvement compared to how it was. You can see my pics of my hand and wrist.here and here Warning: do not look if you get queezy!!

Hugs,
Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

What a very neat job, Lisa!!! :VeryHappy:

 

I'm so glad the operation was a success & that it has encouraged you about getting the other hand done.

 

Here's wishing you a speedy recovery!!! :D


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Lisa,

I am SO GLAD that you are already seeing the difference and that the experience was mild in comparison to what you have been through for years! Hooray!!!!!! The stitches look nasty although the cuts themselves look very neat. I have to admit that I'm ignorant when it comes to knowing what a sympathectomy actually is and what they do and the physical aspects of how it helps to decrease the symptoms of Raynaud's and ulcers. Looks like I have a little research to do. If you feel like typing - could you provide a "brief" explanation?

 

I'm just thrilled for you! :emoticons-yes:


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hello Lisa

 

I am so glad you've already felt an improvement and hope you continue to do so. Thanks for the pictures, very informative.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

The way the dr explained it to me was like this: there is an outer covering on your arteries, like a sock, that constricts, therefore the blood does not circulate as it should. They went in and took the "sock" off of the area of the artery where it enters and exits my hand (on my wrist) and in my palm where it branches off to each finger. Looking forward to a less painful winter!

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Me too: I never really understood what this sympa.....whatever represents. Was afraid to ask but taught that it was some kind of amputation. :VeryHappy: Not even similar!

Now I can see on the pictures (for which I thank you) and from your posts that this is not such a big deal as I thought. The major "scarf" on the pictures is from the black thread and violet pencil marks. After it heals it will be almost invisible.

Good luck.

Erika

Share this post


Link to post
Share on other sites

That's great Lisa. My rheumatologist talked to me about that surgery about this time last year. And for my right hand, too. The Raynaud's hasn't reached ulcer stage but I have a lot of trouble with dryness and cracking (on the right hand). She thought it would be good to stay ahead of the problems. One of my "big" concerns is cost. Medicare is my only insurance until I'm 65 unless I want to pay $600 a month. Indiana doesn't require insurance companies to have supplemental insurance for people with disability between 62 and 65. There's only 1 company that does. Oh well. My Raynaud's just keeps getting worse all of time so I really like the sounds of it. I certainly hope it does a lot for you!! :)

 

Chris (Purr)


Love makes the world go around!

Share this post


Link to post
Share on other sites

Hi Chris,

I would highly reccomend the surgery if you can afford it! Wouldn't medicare cover the surgery except the inpatient deductible? Today I was outside in the early evening and it was gettting a little chilly. I looked down at my hands and my left hand was blue, from the wrist to the finger tips. My right hand was pink with just two little spots that started to change which was closer to my palm near my pinky finger. I couln't believe it! I wished I had my camera!!

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

I forgot to ask what doctor does the surgery? I should know but can't remember.


Love makes the world go around!

Share this post


Link to post
Share on other sites

Purr, the doctor who did mine was an orthopedic hand surgeon. He had already done numerous surgeries of the same type before.

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
Sign in to follow this  
Followers 0