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Buttons

CT Myelogram test

31 posts in this topic

Hi Buttons,

 

I'm really sorry to hear your surgery has been postponed. I'm sure you'll be able to roll with the punches, but that is definitely a punch!

 

There is something to our own psychological timetable for surgeries. It's like there is a certain amount of bracing we do, and somehow we leverage it out over the allotted time. Then when things change (either sooner or later) it feels like more of an adjustment than the surgery itself. Like, the hardest thing regarding my husband's lung transplant wasn't the testing, the surgery, the drugs, the aftercare; the thing that took the most energy for us was planning for the unknown, as we never knew what hour of the day or night it would be. So you feel braced, but for when? And moving things out further means even more of a stretch when we need to calm ourselves, brace ourselves, keep our positive attitude in high gear and cope with the problematic symptoms, too.

 

Well, not much you can do about it anyway, is there? So you might as well dub the extra wait your "party time" and see how much extra fun you can squeeze into those extra days pre-surgery. What can you plan or do before then, that you couldn't otherwise? You will sure have a little more time to prepare for the holidays, as I'll bet they are otherwise rather off the radar for you, with your upcoming recovery.

 

Yes, it's a drag! But we'll be here, dragging right along with you.

 

:emoticon-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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The waiting is the worst thing and I suppose we should all be used it with all the tests etc that we have to deal but it doesn't get any easier. At least I won't miss too many of my Tai Chi sessions before the holidays, it does help with my movement and helps me too relax a little which is what I need at the moment.

 

I am feeling a little better, as you say Shelley you just have to pick yourself up and get on with things. I am going to visit a few old friends and some family who live quite a distance from me. I am pretty well up with all the holiday things so for once I am ahead of myself.

 

I also managed to speak to the consultant yesterday and he was very kind and answered my long list of questions I'd prepared (all written down of course) which has helped somewhat.

 

Thanks for the kind words, it's good to know you have others support.

 

Buttons

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Oh Buttons, I'm also sorry to read that things are delayed, but so glad you were able to visit with the consultant, which must have "helped" calm you a bit.

 

Anticipation really seems to take a lot of energy from those of us with chronic illness. I'm so glad to see you practice Tai Chi, which must really help "calm" your body.

 

I will be keeping you in my thoughts as you await your surgery.

Thank you for keeping us posted!

 

In the meantime, some {{{{Soft Hugs}}}} to use liberally ;)


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Aawww Buttons, Sorry to hear you were a pin cushion per se, sure glad that's over for you now!

 

I agree....just try the best you can to put yourself in the right frame of mind and everything else will follow as it should.

 

As for the festivities, you'll hopefully be ready with a full appetite to eat all the goodies your family and friends make for you (not really so bad if there is no cooking for you to do now, is it?). Especially good that you are already a little ahead yourself for the holidays too. Keep us updated.


Sending good wishes your way!

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Hi Buttons

 

I'm so sorry you had to go through so much lately, as you probably know my sister has been through so much lately also. The best we can do is keep our chin up and always hope for the best!! Plenty of hugs for you! :emoticon-hug: :emoticon-hug: :emoticon-hug:

Sincerely,

 

northstarhope*


northstarhope* :emoticons-i-care:  :thank-you: 

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It is hard to nerve yourself up for something like this- it doesn't help to have to plan again. It's nice that it allows you some time to visit with your family and friends.

 

But you can ring in the new year with an improved you- no New Year resolutions needed there.

 

I hope it is all smooth and uneventful from now on.

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