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Amanda Thorpe

Just call me Jamie...I'm bionic now!

7 posts in this topic

Hello All

 

So Monday I had my bi-ventricular inter cardioverter defibrillator fitted to try and repair the damage done by the myocardial fibrosis and subsequent heart failure. It looked like a huge watch battery and has 3 wires, one for each side of the heart which is the bi-ventricular part and one wire which is the defibrillator. The procedure took 3 hours, longer than the expected 2 and I don't know why. I was probably told but have no recollection of anything that went on after I left the cath lab until I was back on the cardiac care ward. I do know they gave me a lot of pain medication during the procedure which was painful at times and then of course they had to render me unconcious so they could test the defibrillator. I am pleased to say the everyone from the nursing staff to the porters were excellent as of course were the doctors.

 

Tuesday I had to have a chest x-ray to make sure the pacemaker was where it should be and later in the day they tested it which was weird because the tech was pressing buttons on a keyboard which made my heartrate change. So far so good and I have to avoid raising my left arm above my head for 4 weeks so that tissue can grow around the wires in the heart to keep them in place.

 

Tomorrow the bandage comes off and the stiches come out Monday. I am expecting a mega bruise because I initially felt like I'd been stepped on by an elephant and I can still only sleep on my back. If I don't have a spectacular bruise I will be immensely disappointed because I am in competition with Ma. She broke her hip 3 weeks ago and keeps asking me if I want to see her scar...NO...you weirdo...but hey lets look at mine!! :emoticons-yes:

 

Now it's a case of wait and see how it goes and I am expecting good things people! Already I am sure the breathlessness is better and who knows maybe it will eventually go altogther. I know that it could take up to a year before I get the full benefit and that 30% of people never feel any better but I have no intention of being one of the 30%!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Amanda,

 

Glad to hear it went OK apart from it taking a bit longer and hope that you soon feel better and that it is successful for you.

 

Look after yourself.

 

Best Wishes

 

Buttons

 

 

:flowers:

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Amanda, so happy to hear that the surgery went well and you are already feeling the effects from it. You have been amazingly strong with all that you have to handle. I sure hope you are in the 70% group and you do exceedingly well.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hi Amanda, glad all went well , and heres hoping for a bruise to beat all bruises. You get the prize for the most difficult to remember and pronounce name for a procedure.

 

Lizzie

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Well done, Amanda. I hope you rest and recover well. :flowers:

 

see you on saturday

 

best wishes

Debs

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Amanda,

I'm thrilled that it went well!!!!! I'm confident that you will be one of those that definitely feels the difference. I was. Once the drugs wore off and the hubby took me for a walk down the hallway, I felt a HUGE difference. Couldn't live without it. The hubby calls me his little borg.

 

You're going to do great!


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Great news that you've now got your defibrillator fitted, Amanda; there'll be no holding you now!!! :emoticons-yes:

 

My best friend had one fitted 2 years ago & hasn't looked back since. She has a small & barely noticable scar (sorry to disappoint you!! :lol:) The only problem has been when she's gone through scanners such as they have in airports; she tends to light the place up like a Belisha beacon & sets all the alarms off.....at least they know she's there!!! ;) :lol:

 

So glad it all went well. :VeryHappy:


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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