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summer

Tachycardia treatment

25 posts in this topic

I am wondering, whether anyone else has Tachycardia (high heart rate), and what treatment are you receiving from your Cardiologist?.

 

Many thanks,

 

Summer

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Hello Summer,

 

I didn't have pure tachycardia but palpitations which would cause brief incidents of tachycardia including supraventricular tachycardia which required hospitalisation. I was prescribed *bisoprolol, a beta blocker as a result but it's not recommended if Raynaud's is a problem. I have Raynaud's but it's not a major problem.

 

The Mayo Clinic has a comprehensive section on tachycardia that you may find helpful.

 

I assume that your cardiologist will want to run some tests before determining treatments which range from medication to implantable cardioverter-defibrillators...I have one of these now! Has your cardiologist said anything yet?

 

Take care.

 

*Netdoctor


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

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(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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I have had tachycardia as well as pvcs (skipped beats flutters) for 10 years. I have been on a beta blocker atenolol for 8 years. It has worked great but... Beta blockers worsen Raynaud's. Mine has gotten worse so they are talking about switching me to a calcium channel blocker cardizem. It does not cause Raynaud's. Also if the doctor can locate the source of your tachycardia they can ablate (fry) the area through a catheter procedure that's run from your groin to your heart. It has a 95% curative rate. And then you would not need meds. Also when meeting with your doctor, have them teach you vagul manuvers. These can stop the tachycardia rapidly. It's basically holding your breath and bearing down like you are using restroom for a full count of 15 seconds. I just left Mayo this week. They said it must be a full count of 15 seconds. That most doctors are teaching it wrong and not holding it long enough.

 

I am currently not a candidate for an ablation. So I just deal with the meds. Which cause low blood pressure. You should see an electrophysiologist if you have not already. They study the rhythm more than a cardiologist

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Amanda and Chimmana,I got diagnosed with Limited/Crest Scleroderma in 2007, six months after that , I had palpatations and racing heart rate.

 

A few months later, I finally got to see a Cardiologist, who did numerous tests, Stress Echo,six minute walk test, and some others.

My stress Echo, was a disaster, starting rate was 100bpm, after 2 minutes on a flat service of the treadmill, my heart rate raced up to 173 Bpm. I couldn't go any further on the treadmill, due to dizziness and I couldn't get my breath.

 

My cardiologist, started me on a Beta Blocker Atenolol, which seemed to do the trick. But, after awhile, my Raynauds worsened. For a couple of years now, I am on Coralan, an angina tablet, twice daily, the side affects are reduced heart rate. Most recently I have been experiencing arrythmias, like a flutter heart beat. I saw my Cardiologist, last week, and mentioned to him about the arrthmias, which I could often feel and also my blood pressure machine was also picking up. He was not concerned about it.

 

I also mentioned whether there was any other options, besides taking the Coralan for tachycardia. He said there was, but didn't want to go down that path yet. I asked him, what would it do to the heart long term, if I completely ceased the Coralan.He gave me a vague answer, and said that he wasn't sure, whether my heart would be ok, on or off the Coralan.

 

I am due to have another Echo, in December, with another 6 minute walk test.

Many thanks

 

Summer :flowers:

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Hi Summer,

I have had fast heart rate and supraventricular doodads on and off for years, gave up caffeine and alcohol and chocolate but still they kept coming back. Now I am on Cardizem (diltiazem) and have not had a flutter since I worked up to a dose of 240mg. At lower levels they kept coming back. The other bonus is that I have just been through a winter with NO Raynauds attacks. First time for that to happen since 1966!!!! I do have a tendency to hypertension so I can cope with both amlodopine(for Raynauds) and the diltiazem without my blood pressure going too low.

 

Everybody is different and my sclero seems to be affecting my vascular health more than other parts of me. I have incompetent deep veins which cause ulcers on my legs and feet but now that I am on the right meds for me no finger ulcers or migraines any more.

 

Wish I could say the same about my floppy oesophagus!!! I get fed up with hiccups every time I eat.

 

Warm hugs

Judyt

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Hi Summer, I am also on Atenolol for tachcardia and PVC's. It does make my raynauds worse but as I also have wicked migraine with aura it is a balancing act to find something that doesn't make those worse. I rarely have the PVC's now and my pulse stays down in the high 60's. :emoticons-yes:

 

Hugs, Piper

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Judy and Piper, I am wondering whether scleroderma has caused the tachycardia. I have asked my cardiologist this question, and he is unsure. The only thing he has said, is that women seem to get tachycardia, more than men, and he doesn't know why that is. Regardless, whether they have scleroderma or not.

 

Best wishes,

 

Summer

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Hi Summer, I can't really say as I don't have a diagnosis of scleroderma, just fibro. I do have a long list of symptoms as well as the R,E and a couple of T in crest and also a positive ANA for years in a nucleolar pattern.

Maybe more invasive tests like a cardiac catheterization could tell for sure but I guess the main thing is the symptoms are treated.

 

Hugs, Piper <3

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Hi Summer I went to my general practitioner about 6 months ago feeling unwell and thought I was having missed heart beats this had been

going on for a while but that particular day I felt quite bad anyway was sent straight into hospital with atrial fibrilation, meaning fast heart rate. It was over 122 per minute. I was put on Amlodipine. My blood pressure was very high it did feel better for a while I was less breathless and had a bit more energy. However last few days I have been getting clammy and today thought I had better ring my general practitioner only to be sent into hospital with fast heart rate of 133 per minute. I am going on a heart monitor tomorrow to see what is happening to my heart.

 

Hope you are feeling better,

 

Lynn

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Thanks for replying Piper and Lynn.

 

Lynn, are you feeling any better, have you seen a doctor yet?.

 

Best wishes

 

Summer

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Hi Summer,

 

I went to the hospital again this morning. They think I have some inflammation in the lungs so have increased the steriods and I am to take an inhaler every 4 hours. So hopefully that will work. No sign of infection so that's good. I'm just very tired.

 

Lynn

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Lynn, glad that you are feeling a little better, take care of yourself.

 

Best wishes

 

Summer

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Hi Lynn,

 

I'm sorry you're having additional health issues. I'm wondering if they explained to you that the steroids could be causing the missed and rapid heart beats? It is a very common side effect. Since you were already having a problem with that, I'm worried how you'll do on an increased dose of steroids now. Or, did you also get the heart monitor and are being safely tracked?

 

Here are some get better flowers, just for you! :flowers:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi Shelley,

 

Well I am already on steriods. I take 7.5 mg one day then 10mg next day so have just increased it to 10mg every day plus inhaler every 4 hours. I had echo and that was fine so the doctor thinks that my lungs are inflamed and causing the problems. Have to say do feel a bit better today not so breathless so hopefully that will work.

 

I see my sclero doctor on Tuesday and will discuss this and also lung function test. Not that I'm happy about it, as the man is a bully. And I'll also have a CT scan. Strange thing is when I last saw my sclero doctor 6 months ago I said that my heart didn't feel quite right and he said, "That's about as interesting to me as a fly on the wall." So will be very interesting this time. He won't be pleased as I have not managed to get bloods done but the hospital gave me the results of the ones I had done on Monday so they will have to do. I will let you now how I get on. I never knew that the steroids had that side affect. My heart rate was 133 and my blood pressure was high, but went down eventually.

 

Lynn

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Hi Lynn,

 

Well, now, that's a show-stopper. I'm not sure what I'd say or do if any doctor told me, "That's about as interesting to me as a fly on the wall."

 

However, I'm pretty sure that I'd find some way not to ever darken his doorstep again, if it was possible. I hope your next meeting with him goes better. And I hope you consider bringing someone with you, who is sitting there taking notes on everything, just to be on the safe side.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello Lynn

 

Sometimes I wonder...who are these people...a fly on the wall...you have to be kidding me!

 

Yeah never go back if you can find another doctor f not take someone with you who visibly takes notes and preferably someone who will say "pardon?!" to anymore idiotic comments.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Lynn

 

Sorry to hear that you've been having more problems with your lungs and heart.

 

I didn't realise that steroids had that side effect either (I thought I'd braced myself for everything they could do to me!!! :huh: )

 

What a very unhelpful comment for your Sclero doctor to make; I'm sorry to hear that as when I spoke to you I understood that your Sclero doctor was quite good. Perhaps he was having a bad day? :rolleyes: Hopefully when you see him next Tuesday he'll be able to come up with more constructive advice!! ;)

 

Jo


Jo Frowde

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Hi,

 

Well, I went to see the scleroderma doctor today who was concerned about my heart rate. In fact he checked it then sent me straight down for a ECG. He was as confused as I was that one doctor says I have FB another says it sinus rhythm and another says its inflammation in the lungs causing it. My general practitioner says sinus R and FB are the same. My scleroderma doctor says it's not and I've always had inflammation at this point. (Beam me up, Scottie) Any way I'm going back to the doctor I saw when I was admitted to hospital and he will check my lungs etc. as he specalises in this. My scleroderma doctor is putting me on 24 hour monitor on 26 Oct as he doesn't like the fact that I'm doing nothing and my heart is still going to fast and also to have a echo in November so hope fully we will get some where - fingers crossed. Lynn

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Hi its sinus rhythm, hope that is the right spelling and it should have been AF Atrial Fibrilllation lynn

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Hi Summer,

 

I've had tachycardia off and on for years. A few months ago, I went through 6 weeks of straight tachycardia without letup, and then went through the most thorough cardio work up I've ever had. In the end they put me on atenolol, and it has helped.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi Pamela,

I was originally on Atenolol, but my Raynauds worsenend. I found though that Atenolol worked a lot better, than Coralan, which I am on now. Coralan is mainly used for Angina, but also has the side effect of lowering the heart rate.

 

If it's not one thing then its another.

 

Best wishes

 

Summer

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Hi Lynn,

 

How did your 24 hour heart monitoring go? I hope you passed, but then again, I hope they found what's whacky, too, so they can address it.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi Shelley,

 

I have the heart monitor on the 26th of this month so fingers crossed. I will keep you informed.

 

Lynn

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